Although rare cancers don’t occur often, they can affect people of all ages and genders. Greater awareness of rare cancers may lead to earlier diagnosis and management, and potentially better survival rates. Consider these facts about soft tissue sarcomas, one type of rare cancer.
Understanding Rare Cancers
Four facts to know about one type of rare cancer, soft tissue sarcomas
(Family Features) Although rare cancers don’t occur often, they can affect people of all ages and genders.
A rare cancer is defined as fewer than 15 new diagnoses per 100,000 people per year, according to the National Cancer Institute (NCI). Additionally, as noted by the American Cancer Society (ACS), the 5-year survival rate is lower for people diagnosed with a rare cancer than for people living with more common cancers. Greater awareness of rare cancers may lead to earlier diagnosis and management, and potentially better survival rates.
If you have recently been diagnosed with STS, it’s important to ask your doctor for more information about the specific sub-type you have. For example, if you received a diagnosis of undifferentiated sarcoma, ask your doctor for an integrase interactor-1 (INI1) test to see if you have a rare STS called epithelioid sarcoma (ES). (See sidebar for more on ES.)
Learning More About Epithelioid Sarcoma
A rare type of STS, epithelioid sarcoma (ES) accounts for less than 1% of all STS, which themselves account for approximately 1% of all cancers, according to research published in “Archives of Pathology & Laboratory Medicine.” ES can present as a lump or sore on the skin.
Notably, more than 90% of ES tumors do not express the INI1 protein, which when present acts to suppress tumor growth. INI1 loss plays an important role in the diagnosis of ES, according to researchers with “The American Journal of Surgical Pathology.”
Data from the NCI indicates that approximately 150-200 people in the United States are diagnosed with ES each year. Research published in “The Journal of Clinical and Aesthetic Dermatology” found the disease often occurs in young adults in their 20s and 30s. Because most ES patients are adolescents and young adults, there is a gap in the unique psycho-social needs for this patient population, including resources for patients who miss school while undergoing treatments, as well as fertility considerations later in life.
If you or someone you love is living with ES, you can find resources, information and the real-life perspective of an ES survivor at ESsentialsforES.com.
Content courtesy of Epizyme, Inc.
Photo courtesy of Getty ImagesSOURCE:
(BPT) - Every one of the nearly 12,000 babies born in the United States each day may be susceptible to infectious diseases. The good news is that vaccines can help protect children from some of these diseases.
As National Infant Immunization Week (NIIW) approaches, it is timely to remember the role that vaccinations can play in helping to prevent certain diseases among infants. According to the Centers for Disease Control and Prevention (CDC), it is estimated that routine vaccination of the nearly 4 million babies born in the US each year may help to prevent about 20 million cases of diseases that they could develop over their lifetime. In fact, over time, successful vaccination campaigns have contributed to the near-elimination or elimination of some diseases in the U.S., like polio.
Vaccination is considered to be one of the greatest public health achievements since 1900. NIIW, which is held April 16 - 23 this year, highlights the importance of helping to protect infants from diseases for which there are vaccines and celebrates the achievements of vaccination programs in helping to promote healthy communities.
"Today vaccines can help to protect against 14 diseases before age two," explains Eddy Bresnitz, M.D., M.S., Executive Director, Merck Vaccines Global Health & Medical Affairs. "Failure to vaccinate may mean putting your children at risk for potentially serious diseases."
"In the U.S., most young children receive many of the recommended vaccines, but there is room to improve vaccination rates among all groups, including adolescents and adults," says Bresnitz.
In fact, the CDC has specific recommended vaccination schedules that cover children, adolescents and adults. Talk to your healthcare provider about vaccines that may be recommended for you and your loved ones, and visit www.vaccinesandyou.com to learn more.
This information is provided by Merck.
(BPT) - Nearly one in six of all U.S. children and adolescents are obese, according to the U.S. Center for Disease Control. And with some struggling schools forgoing traditional physical education classes, health experts view this issue as a growing concern. The regular physical activity encouraged in PE classes not only helps build and maintain healthy bones and muscle, it has also been shown to improve students' academic performance.
"Research shows that school is one of the first places where kids establish health habits," says Jen Ohlson, co-founder of Interactive Health Technologies LLC (IHT), a company pioneering customized P.E. curricula through the use of heart rate monitoring. "As a solution, many health advocates are turning to physical education to positively impact adolescents' overall health. With the right tools and resources available in school that can extend to home, teachers and parents alike can reach students on an individual level, helping them achieve their own fitness goals."
Ohlson offers her top five tips for teachers, parents and caregivers looking to help their kids get more active:
1. Set measurable short term goals.
Motivation is all about goal setting. Teaching your kids or students to evaluate their habits and make changes that will improve their well being helps them learn the importance of living a healthy lifestyle. Setting goals can be a fun project that teachers, parents and students can work on collaboratively, just be sure the goals are measurable, timely and realistically achievable.
2. Use technology to help them understand.
"Research shows kids in the U.S. are spending more than 7.5 hours a day using technology. Alarming as it may sound, we see leveraging technology as an opportunity to help kids get and stay active," Ohlson says. "Having worked with adidas to develop adidas ZONE for IHT Spirit, the first wrist-based heart rate monitoring device built specifically for PE, we're using wearable technology to motivate students to work out to their own individual potential. Harnessing the power of heart rate zone training, these young athletes can reach their goals by running around, jumping, dancing, really any activity that raises their heart rate, no longer needing to race against their classmates or shoot a certain number of baskets."
3. Make sure they know the "why" and "how."
For students to excel athletically, they need to understand the "how," "why" and "feel" behind the skill in their activity. If a child gets involved in a sport simply because their parents pushed them to, they likely won't be motivated to improve or continue playing. It's important to help your kids find activities that boost their self-esteem.
4. Be a model for active behaviors.
Show your kids how important staying active is by setting a good example. Younger children tend to follow the lead of their parents, so make sure you're looking after your own health. Make the physical health of your entire family a priority.
5. Get involved in group activities.
Kids are more likely to be motivated when they receive support from a group of peers. Whether it's a sports or dance team, running club or an active play date, encourage your kids to get out and be active with their friends.
While rising obesity rates and dwindling physical education classes continue to be a concern, the right approach and resources can help teachers and parents take matters into their own hands. Tools like the IHT Spirit System are certainly a big step forward, and following these tips can also play a part in helping every child get their health on track. For more information and resources visit ihtusa.com/zone.
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