A diagnosis like inflammatory bowel disease (IBD) means lifestyle changes throughout every aspect of life, including financially. IBD has many direct costs of care, like clinic visits, radiology studies, procedures and costly medications. There are also indirect costs such as missed work or school.
A diagnosis like inflammatory bowel disease (IBD) means lifestyle changes throughout every aspect of life, including financially through direct costs of care as well as indirect costs like missed school or work. There are a number of resources like these that can help IBD patients manage the financial impact of the disease, many of which depend on the patient’s stage of life.
Managing the Cost of IBD
(Family Features) A diagnosis like inflammatory bowel disease (IBD) means lifestyle changes throughout every aspect of life, including financially. IBD has many direct costs of care, like clinic visits, radiology studies, procedures and costly medications. There are also indirect costs such as missed work or school.
There are a number of resources that can help IBD patients manage the financial impact of the disease, many of which depend on the patient’s stage of life. For example, young adults transitioning into the workforce and off their parents’ insurance may find their needs quite different from older adults who are approaching Medicare eligibility.
Evaluate your IBD needs and select an affordable insurance plan. When you turn 26, you age out of your parents’ health insurance plan. Your options may include enrolling in a plan sponsored by your employer or your spouse’s employer; purchasing a plan in the health insurance marketplace (you can enroll 60 days before you turn 26 and the timeframe ends 60 days after your birthday); purchasing insurance on the individual market; purchasing COBRA (a temporary health insurance plan that is extended under your parents’ plan for up to 18 months); or going on Medicaid, if you’re eligible.
To decide what’s right for your situation, start by listing your current health care providers and health services. Review the insurance plan you are considering and check whether your current providers, medications and hospital are covered in the plan, and whether they are considered in-network (more cost-efficient) or out-of-network (higher out-of-pocket costs).
You’ll want to weigh potential expenses, including the monthly premiums, deductibles, out-of-pocket maximums, copays and coinsurance, if applicable. Also be aware of the distinctions between medical and pharmacy coverage. This will give you a realistic picture of what you can expect to spend on a monthly and annual basis.
For assistance with your options, consider speaking with an insurance specialist or help center, such as the Crohn’s & Colitis Foundation’s IBD Help Center, which can help you review available plans and find one best suited for your needs.
Participate in a savings program. If you have the option of participating in a Health Savings or Flexible Spending Account, these personal savings programs can help pay your out-of-pocket costs. You contribute a certain amount of untaxed money to the account each year, which can be used toward expenses like prescriptions, deductibles, copayments and coinsurance.
Each program has distinct guidelines on factors, like payment and carrying over unused funds, so it’s important to do thorough research before selecting a plan.
Enroll in manufacturer assistance programs. Depending on your specific circumstances, you may be eligible for assistance from your prescription manufacturers or lab testing companies. In addition to drug copay discount programs and pharmaceutical financial assistance programs, you might be able to access help to offset the cost of certain procedures.
Your health care provider or pharmacist may have information on available programs, or you can visit manufacturer websites and other resources like crohnscolitisfoundation.org/managingcosts.
Investigate grants, foundations, and other assistance programs. Other types of financial assistance are also available. Pharmaceutical companies, the Patient Advocate Foundation, and several other foundations offer college scholarships to IBD patients.
Purchase coordinated or supplemental Medicare insurance. As you approach the age of 65, you enter an enrollment period (3 months prior and 3 months after your birthday) when you are eligible to apply for Medicare, a federal health insurance program. In addition to original Medicare, you have the option of purchasing additional insurance for added health care coverage and benefits, such as a Medicare Advantage Plan (Medicare Part C) or Medigap plan.
Enroll in federal and state savings programs. If you have or are eligible for Medicare Part A, and if you have limited income and resources, your state Medicaid program can help determine whether you qualify for one of the Medicare Savings Programs.
State Health Insurance Assistance Programs (sometimes referred to as SHIP programs) have different names in different states but all provide free one-on-one telephone counseling and advice services, personal face-to-face counseling sessions, public education programs and media presentations for assistance with Medicare programs (including Part D) and Medicaid.
If you have limited income and resources, you may qualify for help paying for prescription drugs. The Medicare Extra Help Program is for Medicare Part D recipients and recipients of both Medicare and Medicaid who have limited income and resources to help pay for prescription drugs.
Apply for financial aid through pharmaceutical companies. Another option, if you are eligible, is to enroll in financial assistance through the drug manufacturers. Funds are available from several manufacturers and non-profits to help patients cover copays and pay their out-of-pocket costs.
Pharmaceutical patient assistance programs are separate foundations set up by the drug manufacturers to provide financial assistance to people who cannot afford their medications. You need to demonstrate financial need when you apply for these programs.
While on private insurance, you may be able to use drug copay cards. The drug company will pay for a portion of the drug and the out-of-pocket cost to the patient is considerably lower. However, drug copay discount cards are generally no longer available to patients when they transition off private insurance onto Medicare.
Investigate grants, foundations and other assistance programs. Additional assistance may be available through other foundations. Find these and other resources to assist in planning your IBD medical expenses at crohnscolitisfoundation.org/managingcosts.
Lower Your Medical Costs
1. Compare prices and select in-network providers. Always ask if your labs and support team members (all providers, not just your gastroenterologist) are in network.
2. Not all pharmacies charge the same, so shop around. Online pharmacies can often be less expensive (for example, a 90-day supply can often be the same cost as a 30-day supply).
3. Check your bill. According to the Medical Billing Advocates of America, billing advocates and other health professionals estimate up to 80% of medical bills contain errors.
4. If insurance refuses to pay, talk to your healthcare provider about appealing the insurance company’s denial.
Photos courtesy of Getty ImagesSOURCE:
Crohn’s & Colitis Foundation
Most folks today are looking for ways to save money in their daily lives. Today, long-term food storage options can be good both for your health and for your budget. This article has helpful tips on how food storage can help anyone eat healthier and cut their food bills.
Long-term food storage options can be good for your health and for your budget. Keeping food long-term may require you to remove air from the packaging. It's also critical that you monitor the time the food has been stored to use it within its expiration date.
The first step to successfully putting away food for long-term use is to carefully monitor the purchase and use-by date. Once you've marked that on the storage container, consider investing in a vacuum sealing tool to make it easy to protect the food against insects, bacterial growth and ice crystal formation. Rice sealed in an airtight canning jar can last up to six years with no sign of insect growth. Bugs are fond of rice, but the processing prior to bagging should kill both bugs and larvae that may live under the husk or germ. According to Vacuum Sealers Unlimited vacuum sealing food removes air from the food which helps prevent bacteria growth, and prevents ice crystals from forming that allows food to stay fresh for much longer.
Processing the Food
Storing prepared food is a simple process, but the steps must be undertaken carefully. You can dehydrate food for both short-term and long-term storage. For the short term, store your dehydrated produce in glass jars so you can keep an eye on it and put it to use quickly. Eat Cured Meats suggests that when preserving meats with salt it’s best to take care to procure salt that's low in nitrates for safe use later. It's also critical to keep the meat at a constant temperature that's above freezing but below 40 degrees Fahrenheit.
Using Up Your Stock
Preserving food for long-term use won't help your budget if you lose track of it and don't use it within a safe period of time. Whether you're using glass jars or vacuum-sealed plastic storage bags it's critical that you carefully label the food and date it. Try to organize your stored food in bins that you can easily rotate the product and use the first-in, first-out method of food preparation.
Whether you're soaking beans or making a meal featuring smoked meat, you want to avoid any food-wasting by forgetting it at the back of the cupboard. Food storage can help anyone eat healthier and cut their food bills. Whether you live near a grocery store or need to drive for an hour to buy a gallon of milk, having food put away for lean times or bad weather can give you confidence.
Speaking of meat, check out this article for tips on how to select the best beef.
For a parent of a child diagnosed with a chronic illness like Crohn’s disease or ulcerative colitis, the future can be scary and overwhelming. Resources are available to help families make sense of many diseases and ailments, and some of these organizations even offer tools specifically designed to help support the care of a child patient
Understanding Pediatric Chronic Illnesses
How families can manage inflammatory bowel diseases
(Family Features) For a parent of a child diagnosed with a chronic illness, the future can be scary and overwhelming. Assembling a medical team and beginning to formulate a treatment plan, even becoming familiar with a glossary of new terminology, can be taxing.
Resources are available to help families make sense of many diseases and ailments, and some of these organizations even offer tools specifically designed to help support the care of a child patient. For example, the Crohn’s & Colitis Foundation is a leading resource for families navigating inflammatory bowel diseases like Crohn’s disease and ulcerative colitis.
What is IBD?
Crohn’s disease may occur in any part of the large intestine (also called the colon). In fact, it can happen anywhere in the entire digestive system. However, it most commonly develops right where the small and large intestine meet. In ulcerative colitis, only the colon and rectum are affected.
No one knows for sure what causes Crohn’s disease or ulcerative colitis, but experts believe several factors may lead to the development of the diseases, including genes, environmental elements like viruses and bacteria, and inappropriate immune reactions.
What are the symptoms?
“It is critical that if you suspect your child has inflammatory bowel disease, you seek care with a qualified pediatric gastroenterologist who can carefully and efficiently help determine the diagnosis and begin a treatment plan to help your child feel better, thrive, and maximize quality of life,” said Andrew Grossman, MD, pediatric gastroenterologist and chair of the pediatric affairs committee of the Crohn’s & Colitis Foundation.
How does it affect children?
They are often overwhelmed by the emotional and psychological side effects of the disease.
Learning how to manage the disease is not always easy for children. Parents play an important role in educating their children about IBD, including teaching them they need to take their health seriously and take responsibility for caring for themselves.
How can IBD be managed?
Maintaining your child’s health may also involve lifestyle accommodations, like organizing your schedule for ample bathroom breaks when away from home. You may also need to work closely with your child’s school to manage absences and academic performance along with any medical care that needs to take place during school hours.
Many families also find value in building a network of supportive friends and loved ones. One example, the Crohn’s & Colitis Foundation offers Camp Oasis – a co-ed residential camp program that allows children to meet others like them in a safe and enriching environment.
Another resource is justlikemeibd.org , a website featuring stories and videos from teens with IBD as well as information on school, dating, managing stress and diet, research updates, and resources for parents.
Is your child ready to manage his or her own care?
Photos courtesy of Getty ImagesSOURCE:
Crohn’s & Colitis Foundation
For the up to 16 million Americans living with IBS-D, it is often an uncomfortable disorder that can reduce a patient’s quality of life. IBS-D affects twice as many women as men and often occurs in people younger than 45. It can cause interference with daily activities and avoidance of certain foods. If you’ve experienced these symptoms, Dr. Howard Franklin, MBA, vice president of medical affairs and strategy at Salix Pharmaceuticals. offers two important steps you can take.
(BPT) - "As a doctor, I want patients to have open conversations with me about any symptoms they may experience without feeling uncomfortable," said Dr. Howard Franklin, MBA, vice president of medical affairs and strategy at Salix Pharmaceuticals. "But, I understand that patients may sometimes choose not to talk about symptoms they find embarrassing."
Such is the case when it comes to discussing bowel movements. For people who experience abdominal pain and diarrhea, it is important to discuss these symptoms with your doctor as they may be signs of irritable bowel syndrome with diarrhea (IBS-D).
A report published by the American Journal of Gastroenterology found that up to 75 percent of individuals living with irritable bowel syndrome may be undiagnosed. You are not alone.
For the up to 16 million Americans living with IBS-D, it is often an uncomfortable disorder that can reduce a patient’s quality of life. IBS-D affects twice as many women as men and often occurs in people younger than 45. It can cause interference with daily activities and avoidance of certain foods.
If you’ve experienced these symptoms, Franklin offers two important steps you can take.
Understand the disorder
IBS-D is a disorder of the large intestine and though the precise cause is unknown, it is believed that there are various factors that can play a role in creating symptoms. Stronger, longer muscle contractions in the intestines and poorly coordinated signals between the brain and the intestines are all possible causes for IBS-D. Often, IBS-D is triggered by food, caffeine, stress, carbonated drinks, artificial sugars or infectious diarrhea.
Changes in bacteria in the gut have also been linked to symptoms of IBS-D. In a healthy state, the microbiome and the human host have a mutually beneficial relationship as the host intestine provides the bacteria with an environment to flourish and the bacteria provides physiological stability. A change in the number of bacteria and in their type can disrupt this relationship.
Talk to your doctor
Don’t hesitate to initiate the conversation with your doctor if you experience symptoms of IBS-D.
It’s time to talk to your doctor if:
* Your abdominal pain keeps coming back at least one day per week in the last three months
* The frequency of your bowel movements, and/or the way your stool looks has changed
Here are a few ways you can prepare for a conversation with your doctor:
1. Write down your symptoms and triggers.
2. Make a list of all your medications.
3. Plan questions in advance, such as: What are the likely causes of my symptoms? Should I make any changes to my diet or lifestyle? What treatment options do you recommend for me?
There is no need to suffer with IBS-D in silence. Speak up to your doctor and, together, find ways to manage the disorder. For more information about IBS-D, visit www.LetsTalk-2.com.
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