Age-related Macular Degeneration (AMD) is a leading cause of vision loss for people age 50 and older, and an estimated 16 million Americans are living with AMD. While an AMD diagnosis can be a scary thought, there are things people can do to help reduce the risk of progression of the disease. Here’s what you need to know.
(BPT) - The ability to see the people, places and things in front of you is one of life’s most precious gifts. Imagine a life without the ability to see these things clearly — what steps would you then take to protect your vision? Life with Age-related Macular Degeneration, or AMD, can potentially lead to vision loss or blindness. While an AMD diagnosis can be a scary thought, there are things people can do to help reduce the risk of progression of the disease. Here’s what you need to know.
What is AMD?
AMD is a leading cause of vision loss for people age 50 and older, and an estimated 16 million Americans are living with AMD. AMD affects the macula, the part of the eye that supports sharp, central vision needed for seeing objects clearly. The condition is progressive, which means that central vision can ultimately become impaired, which may cause difficulty keeping up with daily activities like driving, reading or recognizing the faces of loved ones. While there is no cure for AMD, there are steps patients can take to help reduce the risk of progression.
Tips for taking action
In addition, people diagnosed with AMD should talk to their doctor about taking a vitamin based on the AREDS2 study. PreserVision® AREDS 2 formula vitamins contain the exact nutrient formula recommended by the National Eye Institute to help reduce the risk of moderate to advanced AMD progression.
Get the facts and find support
Patients are often learning about AMD for the first time as they’re being diagnosed, which can be overwhelming. While the Internet is a great resource for patients, medical literature about AMD is often dense and difficult to follow. That’s why Bausch + Lomb developed SightMatters.com, an online resource to provide AMD patients with personalized tips and tools, along with a support system and network, to help each patient better navigate their life living with AMD no matter where they are on that journey.
SightMatters.com aims to help patients understand what AMD is, and how they can manage it. It also allows patients the opportunity to create a personalized action plan, which they can use to discuss with their doctor so they can start taking charge of their condition and continue to see what they love each day. Visit SightMatters.com to begin taking action today.
PreserVision is a trademark of Bausch & Lomb Incorporated or its affiliates.
AREDS2 is a registered trademark of the U.S. Department of Health and Human Services (HHS).
© 2020 Bausch & Lomb Incorporated or its affiliates.
The stark reality is that more and more Americans each and every day find themselves taking on the role of caregiver for a family member. This can present immense physical and emotional challenges. The first steps suggested here can help you find some balance as you navigate your caregiver journey.
(BPT) - Caring for a loved one with a chronic illness is something millions of Americans do every day. Whether it is a parent, spouse, extended family member or friend, the stress of caring for another adult can take a toll.
"I have to do absolutely everything for her," explains Anthony Cowels, whose 71-year-old wife, Florence, was diagnosed with multiple sclerosis in 1986. As he watched her disease progress, his caregiver responsibilities grew. What's more, for some of the years Cowels also cared for his elderly parents, compounding his responsibilities.
"It has been a long journey of caregiving," says Cowels, 70. "I try not to let it overwhelm me. I always look for ways to do better." Cowels learned to care for both himself and his wife better through useful tools, education and friendship and by joining a caregiver support group. He says he can "interact with others who identify with my situation.”
Family caregiving: A growing trend
Cowels represents a growing number of Americans who care for older or aging loved ones. About 41 million family caregivers in the United States provided an estimated 34 billion hours of care to an adult with limitations in daily activities in 2017, notes the AARP report Valuing the Invaluable: 2019 Update. What's more, as the population ages, caregiving demands are increasing while the pool of potential caregivers is decreasing.
As the Valuing report states, "Americans will have more older relatives or close friends to potentially care for than children in about 15 years. The U.S. Census Bureau projects that, by the year 2035, adults ages 65 and older will outnumber children under the age of 18 for the first time in U.S. history. This fundamental demographic shift is the result of the aging of the U.S. population, increasing longevity, and a declining birth rate. "
Caring for yourself
In addition to helping with self-care activities like bathing, dressing and going to the bathroom, family caregivers today often perform complex medical tasks, including wound care, giving injections and handling medical equipment. The tasks that were once provided in hospitals and health care clinics are increasingly the responsibility of family and friends, who are often given little training or support.
While many family caregivers often report positive feelings in their role such as a sense of purpose or connection with their loved one, it often comes with feelings of being overwhelmed. Exhaustion, worry, loneliness and financial stress are common challenges caregivers face. If you also work a full-time job, it can be even more difficult to balance your needs and responsibilities.
While you may not achieve perfect balance, it is important to prioritize your physical and mental wellbeing, so you can be there for the person you care for. These first steps can help you find some balance as you navigate your caregiver journey:
It is important for family caregivers to stay mentally and physically healthy so they can provide the best care possible to the growing number of people who need support. For helpful tips and caregiver resources, visit www.aarp.org/caregiving.
Nearly 16 million people in the United States are currently living with a COPD diagnosis, and millions more don’t know they have it. In people with COPD, the airways that carry air in and out of the lungs become partially blocked, which makes it increasingly difficult to breathe. If left undetected, the disease can greatly affect your quality of life and your ability to complete even ordinary daily activities.
Are Your Lungs Trying to Tell You Something?
(Family Features) Do you get short of breath doing daily activities? Feel like you’re unable to take deep breaths? Are you constantly coughing or wheezing? If you said yes to any of these questions, you may be experiencing symptoms of chronic obstructive pulmonary disease (COPD), a serious, potentially devastating lung disease also known as chronic bronchitis or emphysema. Though it’s easy to think of these symptoms as just part of “getting older’’ or as problems that come with allergies, often they are not.
Nearly 16 million people in the United States are currently living with a COPD diagnosis, and millions more don’t know they have it. COPD is the fourth leading cause of death in the United States and a leading cause of disability.
In people with COPD, the airways that carry air in and out of the lungs become partially blocked, which makes it increasingly difficult to breathe. If left undetected, the disease can greatly affect your quality of life and your ability to complete even ordinary daily activities.
COPD often occurs in people who have a history of smoking or long-term exposure to secondhand smoke and other lung irritants, such as air pollution, chemical fumes, and dusts from the environment or workplace. The chances of getting COPD also increases significantly in people who have alpha-1 antitrypsin deficiency, a rare genetic condition.
While COPD develops slowly and worsens over time, its symptoms can be treated and its progression can be slowed, which is why early detection and treatment are so important. If you are noticing any issues with your breathing, talk to your health care provider about getting tested for COPD. The sooner you get a diagnosis, the sooner treatment can begin. Your provider will design a treatment plan to help address your symptoms and improve your lung function and quality of life.
The key to keeping COPD at bay – or preventing it from getting worse – is to understand and recognize the signs and symptoms early and discuss them with your health care provider. The sooner this happens, the sooner you can get back to doing the things you love.
Through educational efforts like the Learn More Breathe Better program (https://www.nhlbi.nih.gov/breathebetter ), the National Heart, Lung, and Blood Institute shares valuable information about the symptoms of COPD, as well as how to diagnose and treat it. With these tools, those living with COPD can effectively manage the disease, and those who have symptoms can find the support and assistance they need.
Photo courtesy of Getty ImagesSOURCE:
National Heart, Lung, and Blood Institute
One in eight U.S. women will develop invasive breast cancer in their lifetime. The treatment of invasive breast cancer should be personalized because what is best for one woman may not be right for another. If you have breast cancer, it's important to take an active role in your health by learning about your available treatment options. An ongoing, collaborative discussion with your doctor is key in determining what treatment option best fits your individual needs.
(BPT) - As a commercial airline pilot with nearly 30 years of experience, Diane Sandoval, 50, is no stranger to making difficult decisions. However, she faced one of her toughest challenges not in the skies, but when she discovered a small lump in her left breast during a self-examination. Her worst fear was confirmed after a visit to her doctor when she was diagnosed with early-stage breast cancer.
Following an inconclusive mammogram and ultrasound, Sandoval learned she had several small tumors. She underwent a mastectomy to remove the tumors followed by breast reconstruction, putting her piloting career on pause.
The next big question was whether she should receive chemotherapy or not. Her physician recommended a genomic test — the Oncotype DX Breast Recurrence Score test. This tool has been proven to determine whether chemotherapy will be beneficial for individuals recently diagnosed with early-stage breast cancer. The test provides a personalized score based on the biology of the patient’s tumor that can help tailor treatment decisions for their individual cancer. Recent results from the largest breast cancer study ever conducted, called TAILORx, confirmed that the test clearly identified the 70 percent of women with early-stage breast cancer who receive no benefit from chemotherapy, as well as the remaining 30 percent of women for whom chemotherapy can be life-saving.
Sandoval is one of the nearly 1 million women who has put chemotherapy to the test with this genomic test. Her score confirmed that her risk of experiencing a breast cancer recurrence was low and she would not benefit from chemotherapy. As a result, she felt confident that she could forgo chemotherapy and its associated side effects. Subsequently, she was able to resume her career as a pilot and her active lifestyle.
She recently joined a campaign called “Put Chemo to the Test” to raise awareness of the Oncotype DX test and encourage women recently diagnosed with early-stage breast cancer to ask their doctor to order it before finalizing their treatment plan.
“I hope to help women with early-stage breast cancer better understand their treatment options by raising awareness of this test and how it can determine whether they are part of the majority of patients who may be spared chemotherapy and its well-known side effects or are among the important minority of patients who could receive life-saving benefit from chemotherapy,” said Sandoval.
One in eight U.S. women will develop invasive breast cancer in their lifetime. The treatment of invasive breast cancer should be personalized because what is best for one woman may not be right for another. If you have breast cancer, it's important to take an active role in your health by learning about your available treatment options. An ongoing, collaborative discussion with your doctor is key in determining what treatment option best fits your individual needs. Below are a few questions to ask your doctor:
Breast cancer patients and caregivers can visit ChemoYesorNo.org to download the full physician discussion guide and learn more about the test.
“I want women who were recently diagnosed with early-stage breast cancer to know that there is no one-size-fits-all treatment approach,” said Sandoval. “The test gave me the confidence I needed to forgo chemotherapy, which has allowed me to continue to enjoy my life with my husband. Ask your doctor to order this genomic test before finalizing your treatment plan.”
Choosing a new doctor is an important decision that nearly everyone experiences at one time or another, whether it’s finding a new family physician or pediatrician after a move or searching for a specialist after being diagnosed with a condition such as heart disease, diabetes or cancer. This information can help you find the right physician for your and your family.
Choosing the Right Doctor for You and Your Family
(Family Features) What matters to you when finding a doctor to treat you or your family members?
A recent survey commissioned by the American Board of Medical Specialties found that four out of five people ranked Board Certification as an important factor when selecting a doctor, second only to whether the doctor is covered by their insurance.
Choosing a new doctor is an important decision that nearly everyone experiences at one time or another, whether it’s finding a new family physician or pediatrician after a move or searching for a specialist after being diagnosed with a condition such as heart disease, diabetes or cancer.
When selecting a physician, you want to know the doctor you choose is qualified and that you and your family will receive the best care. Board Certified doctors hold themselves to a higher standard and have demonstrated their knowledge and expertise in their specialty. This higher standard has been found to be important to patients.
“Choosing a doctor is one of the most important decisions you’ll make regarding your health,” said Richard E. Hawkins, MD, president and chief executive officer, American Board of Medical Specialties (ABMS), the leading not-for-profit organization overseeing physician certification in the United States. “Today’s patients have a greater expectation for quality. Board Certified physicians offer people confidence that their doctor has the specialized knowledge, skills and clinical judgment to provide the high-quality care they expect and deserve.”
What is Board Certification?
To find a Board Certified doctor near you, visit CertificationMatters.org.
Photos courtesy of Getty ImagesSOURCE:
American Board of Medical Specialties
(BPT) - Whether you’ve helped a family member through treatment or are facing a diagnosis yourself, hearing the word “cancer” can make people feel powerless and overwhelmed. For many, the best way to regain control is to be as educated as possible. This desire to be informed can lead to an endless and exhausting search for relevant, trustworthy, and relatable information.
"People with cancer are overwhelmed by information from many disparate sources, however, they need to absorb and retain what’s important to them. Curated information that is specific to their individual situation allows them to focus without having to sift through irrelevant and often inaccurate content."
Chief Strategy and Alliance Officer
That’s why the Janssen Pharmaceutical Companies of Johnson & Johnson collaborated with leading advocacy organizations to develop Cancer.com, a new online destination for people impacted by cancer. Cancer.com offers educational information, a powerful coaching tool, and links to relevant blogs and social channels, all in one place.
You can create a profile that serves up content tailored to you. This includes information for your cancer type and where you are in your cancer experience: just diagnosed, undergoing treatment, or living in remission.
Further customize your Cancer.com experience by learning more about topics that interest you. Cancer.com topic areas were created based on what patients and caregivers search for the most, including:
“Every person’s journey through cancer is different, which makes personalized information an essential part of the patient’s care plan. We want to help individuals find the combination of educational and emotional support resources that will give them a sense of control.”
Hildy Dillon, MPH
Vice President, Education and Support Programs
Cancer Support Community
Cancer.com houses information from key patient advocacy groups that collaborated on the site: the American Cancer Society, CancerCare, and Cancer Support Community. It is also a gateway to the educational resources and tools featured on these groups’ websites. Additionally, Cancer.com features a wealth of articles and links to content from reliable sources that include government agencies, medical centers, and news and academic media.
"As a trusted resource for cancer information, the American Cancer Society is pleased to contribute its expertise and content to ensure people affected by cancer receive the most up-to-date information to make informed decisions about their health."
Senior Vice President, Cancer Control Programs and Services
American Cancer Society
Beyond trusted, personalized, and compelling content, Cancer.com features interactive tools designed with your needs in mind:
Is your workplace a nurturing professional environment, or does competition and rank often override camaraderie and support?(BPT) - In order for nurses and other health care staff to do their jobs as best as possible, a culture of care can make a big difference. This means creating a workplace that fosters growth, supports professionals' needs and brings teams closer together. When health care teams feel cared for and supported, they are more inclined to provide their best care of patients and families, which improves outcomes all around.
Chamberlain University president Susan Groenwald, PhD, RN, ANEF, FAAN just released a book that addresses this topic. “Designing & Creating a Culture of Care for Students and Faculty: The Chamberlain University College of Nursing Model” serves as a guide for any organization seeking to make cultural and structural changes to improve student or employee satisfaction, engagement and achievement. The book describes the unique organizational culture — Chamberlain Care -- in which students and colleagues thrive, students are cared for in a way that can improve their chances of success, and that provides an advantage in attracting and retaining high-quality and effective health care faculty and staff.
What are the possibilities when an organization takes such big steps toward revolutionizing its culture? Groenwald (2017) provided evidence that enhanced services and support provided to students and faculty improved employee satisfaction, engagement and academic outcomes. Groenwald’s theory is that by providing extraordinary care to students and colleagues, they are more likely to provide extraordinary care to patients and family. For example, an independently administered survey of international employee engagement in various industries benchmarked Chamberlain faculty against employees worldwide. Since 2013, Chamberlain’s faculty engagement scores have remained above the benchmark for the best U.S. companies and continue to rival benchmark scores for the best companies in the world.1
“While many books and articles have advocated for care and caring in nursing education, what truly distinguishes this text and the work it describes throughout Chamberlain University is its thorough coverage of how caring can be operationalized — and made tangible — in all aspects of an organization's mission, vision, people, processes and practices,” said National League for Nursing President Anne L. Bavier, PhD, RN, FAAN, dean and professor in the College of Nursing and Health Innovations at the University of Texas at Arlington. “In nursing education, a strong and positive culture that permeates throughout the institution not only helps nursing students stay in school and graduate, but ultimately provides the support needed for them to truly learn and develop the knowledge, skills and values today’s nurses truly need,” said Groenwald.
To learn more about creating a culture of care and to order the book, visit the National League for Nursing website at http://nln.lww.com.
1 Groenwald, S. (2017). Designing & Creating a Culture of Care for Students and Faculty: The Chamberlain University College of Nursing Model.
(BPT) - People are more connected now than ever before thanks to the globalization of technology, international travel, commerce and industry. But this interconnectedness also means that health concerns, which were once limited to a community, can have a global impact. The Zika virus, the outbreak recently declared a global emergency by the World Health Organization (WHO), is the latest example of a foreign health issue that quickly raised concern within our borders.
Nurses are using the technology that connects us to prepare for this new reality. Through virtual simulation education, they are learning to care for diverse populations and practicing global health scenarios including epidemics, rare illnesses and other infectious diseases.
"Globalization has changed our approach to health care. Viral diseases can spread rapidly, so we have to be ready," says Dee McGonigle, professor in Chamberlain College of Nursing's Master of Science in Nursing (MSN) degree program. "Virtual learning environments provide valuable, interactive education on best practices for patient safety and disease containment in a real-time scenario that mimics real life."
Dr. McGonigle heads up the college's 3-D Virtual Learning Environment (VLE). During the Ebola outbreak in 2014, she and several colleagues built the Virtual Ebola Treatment Center (VETC) in Second Life, a virtual world created by its global community of users. In Second Life, users - known as residents - are represented by avatars that can walk, run, sit, stand, fly and interact with other residents.
Chamberlain students learned how to admit and care for Ebola patients by practicing scenarios in the VETC within Second Life. Faculty from the MSN Informatics specialty track facilitated and mentored students through the risk-free virtual learning experience.
Like the Zika virus, the Ebola crisis was a wake-up call that proved how quickly disease can spread and how important it is to be prepared. Seemingly overnight, health care professionals and students nationwide were tasked with developing expertise on a disease that was previously of little concern to U.S. citizens.
"Nurses around the world were looking for answers," says Dr. McGonigle. "We knew we had the opportunity to build a critical training tool to prepare our students to treat Ebola patients."
Chamberlain alumna Kellany Cadogan-Noland, now a clinical learning lab specialist at Chamberlain, utilized Second Life for her MSN Informatics Specialty Track nursing project. Second Life nursing projects are designed to help those who cannot complete them in a real-world situation because of geographic or other limitations.
Cadogan-Noland used the VETC to test potential responses to an Ebola outbreak in the United States. She collaborated with mentors around the country to determine which infrastructures and clinical processes - such as clinical dressing locations for hospital staff - were most effective at disease containment. Within weeks of completing her project, the West African outbreak had spread to the United States. Cadogan-Noland and her team adjusted their VETC strategy to implement and test containment plans as they were announced by the WHO.
"I benefitted more from Second Life than I would have through an onsite project because we could adapt the virtual environment to our learning needs so quickly," Cadogan-Noland says. "I was able to quickly test scenarios through simulations. We couldn't have accomplished this within such a short timeframe in a brick and mortar facility."
Chamberlain faculty and students can easily adapt their model of virtual simulation education to address other emerging global health issues like the Zika virus, giving nurses like Cadogan-Noland an extraordinary window to the rest of the world. Dr. McGonigle and other Chamberlain leaders behind the VETC are planning more interprofessional collaboration in the future to explore new innovative applications of the virtual learning experience for their students.
"The quality of virtual learning is continually evolving with enhanced technology and feedback from putting simulation methods into practice," says Dr. McGonigle. "We have so much more to discover with virtual learning. We are just getting started as we use it this to educate nurses who will go on to transform health care worldwide."
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