For a parent of a child diagnosed with a chronic illness like Crohn’s disease or ulcerative colitis, the future can be scary and overwhelming. Resources are available to help families make sense of many diseases and ailments, and some of these organizations even offer tools specifically designed to help support the care of a child patient
Understanding Pediatric Chronic Illnesses
How families can manage inflammatory bowel diseases
(Family Features) For a parent of a child diagnosed with a chronic illness, the future can be scary and overwhelming. Assembling a medical team and beginning to formulate a treatment plan, even becoming familiar with a glossary of new terminology, can be taxing.
Resources are available to help families make sense of many diseases and ailments, and some of these organizations even offer tools specifically designed to help support the care of a child patient. For example, the Crohn’s & Colitis Foundation is a leading resource for families navigating inflammatory bowel diseases like Crohn’s disease and ulcerative colitis.
What is IBD?
Crohn’s disease may occur in any part of the large intestine (also called the colon). In fact, it can happen anywhere in the entire digestive system. However, it most commonly develops right where the small and large intestine meet. In ulcerative colitis, only the colon and rectum are affected.
No one knows for sure what causes Crohn’s disease or ulcerative colitis, but experts believe several factors may lead to the development of the diseases, including genes, environmental elements like viruses and bacteria, and inappropriate immune reactions.
What are the symptoms?
“It is critical that if you suspect your child has inflammatory bowel disease, you seek care with a qualified pediatric gastroenterologist who can carefully and efficiently help determine the diagnosis and begin a treatment plan to help your child feel better, thrive, and maximize quality of life,” said Andrew Grossman, MD, pediatric gastroenterologist and chair of the pediatric affairs committee of the Crohn’s & Colitis Foundation.
How does it affect children?
They are often overwhelmed by the emotional and psychological side effects of the disease.
Learning how to manage the disease is not always easy for children. Parents play an important role in educating their children about IBD, including teaching them they need to take their health seriously and take responsibility for caring for themselves.
How can IBD be managed?
Maintaining your child’s health may also involve lifestyle accommodations, like organizing your schedule for ample bathroom breaks when away from home. You may also need to work closely with your child’s school to manage absences and academic performance along with any medical care that needs to take place during school hours.
Many families also find value in building a network of supportive friends and loved ones. One example, the Crohn’s & Colitis Foundation offers Camp Oasis – a co-ed residential camp program that allows children to meet others like them in a safe and enriching environment.
Another resource is justlikemeibd.org , a website featuring stories and videos from teens with IBD as well as information on school, dating, managing stress and diet, research updates, and resources for parents.
Is your child ready to manage his or her own care?
Photos courtesy of Getty ImagesSOURCE:
Crohn’s & Colitis Foundation
One common condition to be aware of is atrial fibrillation (AFib), which is a quivering or irregular heartbeat that can lead to blood clots, stroke, heart failure and other heart-related complications. The first step toward managing AFib and preventing serious health complications is gaining knowledge about the condition. Increase your awareness with these facts.
How to Reduce Health Risks by Understanding AFib
(Family Features) Oftentimes, seeking to improve your health starts at your core – your heart. One common condition to be aware of is atrial fibrillation (AFib), which is a quivering or irregular heartbeat that can lead to blood clots, stroke, heart failure and other heart-related complications.
Currently impacting up to 6.1 million Americans, AFib is projected to double by 2030, according to the American Heart Association. One in three individuals is at risk for developing AFib over the course of his or her lifetime, and the likelihood of developing the condition increases by almost 40 percent after the age of 55.
The average person living with AFib has a five-fold increase of experiencing a stroke than someone with a regular heartbeat. However, proper diagnosis and treatment can help reduce the chances of associated heart health complications, including stroke.
The first step toward managing AFib and preventing serious health complications is gaining knowledge about the condition. The experts at the American Heart Association are working to elevate awareness with these facts:
Symptoms and signs
“Atrial fibrillation can be challenging to diagnose,” said Dr. Georgeanne Freeman, a board-certified family medicine doctor and American Heart Association volunteer expert. “If you are feeling out of the ordinary, whether it's a racing pulse or irregular heartbeat associated with shortness of breath and fatigue, it’s time to speak with your doctor to learn your risk for AFib and lower your chance for stroke.”
Other common symptoms include dizziness, weakness, faintness or confusion; fatigue when exercising; sweating and chest pain or pressure.
People of African, Asian or Hispanic ancestry are typically less likely to suffer from AFib. However, research suggests that those with African or Hispanic ancestry living with AFib have a higher risk of death when the condition is combined with another factor such as heart failure or high blood pressure.
To learn more and to access AFib tools and resources, visit heart.org/AFib.
Photo courtesy of Getty ImagesSOURCE:
American Heart Association
(BPT) - In the winter, we tend to be in closer quarters indoors and constantly around friends and family. It is important to be conscious of infectious diseases, such as methicillin-resistant Staphylococcus aureus (MRSA), which are spreading rapidly among public places like gyms and schools. MRSA prevention should continue at home, especially for groups at higher risk, like student athletes.
Taking simple measures at home and on-the-go can help you to protect and safeguard your health, environment and family from dangerous bacteria and viruses, including MRSA, this season. Clorox teamed up with Jeanine Thomas, MRSA survivor and founder of MRSA Survivors Network; former NFL player Brandon Noble, who has been personally affected by MRSA; and Saskia v. Popescu, hospital epidemiologist and infection preventionist, to share the following expert tips:
1. Wash your hands frequently with soap and warm water for at least 15 seconds — the time it takes to sing "Happy Birthday" twice — or use an alcohol-based hand sanitizer. “Winter is a prime season for stomach bugs and diarrheal illness, so it’s important to stay vigilant with hand hygiene,” said Popescu. Be extra cautious in public settings like gyms, locker rooms, households and schools, where these viruses are increasingly spreading.
2. Keep to yourself and do not share personal items, such as towels or razors, which contact bare skin. MRSA is easily spread by skin-to-skin contact or touching contaminated items or surfaces. It is also resistant to many antibiotics, making it difficult to treat.
3. Act fast and take care of cuts and open wounds by covering them up with a clean, dry bandage until healed. Seek a medical professional if the wound worsens or doesn’t heal quickly. “When I contracted MRSA, it changed my life. I had no idea such a disease existed and would pose as a threat to my career, health and overall well-being,” said Noble.
4. Use a barrier, such as a towel or clothing, between skin and shared equipment at the gym. MRSA prevention should continue at home, especially for groups at higher risk like student athletes, as MRSA bacteria can remain on surfaces after someone touches them, making it possible for someone else to pick them up.
5. Regularly clean countertops and other surfaces in your home. “Keeping your germs at bay in the kitchen is easy,” said Thomas. “Just mix 1/2 cup bleach with one gallon of water, wipe surfaces and leave solution on for 5 minutes and then rinse.” The CDC recommends disinfecting surfaces which are likely to contact skin with an EPA-registered disinfectant, like Clorox Regular Bleach with Cloromax.
MRSA is one common superbug that can be potentially deadly. Caused by a type of staph bacteria often found on the skin and in the nose, MRSA is easily spread by skin-to-skin contact or touching contaminated items or surfaces. It is also resistant to many antibiotics, making it difficult to treat. The Centers for Disease Control and Prevention (CDC) estimates that there are 72,444 infections and 9,194 MRSA-related deaths each year in the U.S alone.
“In 2000, I had ankle surgery and ended up infected with the antibiotic-resistant bacteria MRSA. The infection spread to my bone marrow and bloodstream and required many surgeries and rehabilitation,” said Thomas. “Since then I have been dedicated to advocating for patients and families to help inform them and bring awareness of the disease and prevention measures to the general public.”
“I wish I had known the simple ways to prevent the spread of this disease, like I do now, as that could have made all the difference,” said Noble. As germs and illnesses spread quickly, especially in close-proximity areas, taking proactive steps to prevent common viruses and bacteria from spreading in the home, at schools and in locker rooms is more important than ever. Learn more on how to prevent the spread of viruses and bacteria, such as MRSA, at Clorox.com.
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