The stark reality is that more and more Americans each and every day find themselves taking on the role of caregiver for a family member. This can present immense physical and emotional challenges. The first steps suggested here can help you find some balance as you navigate your caregiver journey.
(BPT) - Caring for a loved one with a chronic illness is something millions of Americans do every day. Whether it is a parent, spouse, extended family member or friend, the stress of caring for another adult can take a toll.
"I have to do absolutely everything for her," explains Anthony Cowels, whose 71-year-old wife, Florence, was diagnosed with multiple sclerosis in 1986. As he watched her disease progress, his caregiver responsibilities grew. What's more, for some of the years Cowels also cared for his elderly parents, compounding his responsibilities.
"It has been a long journey of caregiving," says Cowels, 70. "I try not to let it overwhelm me. I always look for ways to do better." Cowels learned to care for both himself and his wife better through useful tools, education and friendship and by joining a caregiver support group. He says he can "interact with others who identify with my situation.”
Family caregiving: A growing trend
Cowels represents a growing number of Americans who care for older or aging loved ones. About 41 million family caregivers in the United States provided an estimated 34 billion hours of care to an adult with limitations in daily activities in 2017, notes the AARP report Valuing the Invaluable: 2019 Update. What's more, as the population ages, caregiving demands are increasing while the pool of potential caregivers is decreasing.
As the Valuing report states, "Americans will have more older relatives or close friends to potentially care for than children in about 15 years. The U.S. Census Bureau projects that, by the year 2035, adults ages 65 and older will outnumber children under the age of 18 for the first time in U.S. history. This fundamental demographic shift is the result of the aging of the U.S. population, increasing longevity, and a declining birth rate. "
Caring for yourself
In addition to helping with self-care activities like bathing, dressing and going to the bathroom, family caregivers today often perform complex medical tasks, including wound care, giving injections and handling medical equipment. The tasks that were once provided in hospitals and health care clinics are increasingly the responsibility of family and friends, who are often given little training or support.
While many family caregivers often report positive feelings in their role such as a sense of purpose or connection with their loved one, it often comes with feelings of being overwhelmed. Exhaustion, worry, loneliness and financial stress are common challenges caregivers face. If you also work a full-time job, it can be even more difficult to balance your needs and responsibilities.
While you may not achieve perfect balance, it is important to prioritize your physical and mental wellbeing, so you can be there for the person you care for. These first steps can help you find some balance as you navigate your caregiver journey:
It is important for family caregivers to stay mentally and physically healthy so they can provide the best care possible to the growing number of people who need support. For helpful tips and caregiver resources, visit www.aarp.org/caregiving.
(BPT) - Heat and humidity can make anyone feel uncomfortable, but for the 400,000 people living with multiple sclerosis (MS) in the United States, warmer weather can make life particularly difficult to manage.
“When it’s warm and sunny, that’s when I want to spend the most time outdoors,” said Wendy Booker, who has been living with MS for almost 20 years. “I enjoy gardening, walking and eating outside, but the heat is sometimes too much to bear, and I find it difficult to even get out the door.”
Symptoms of MS, including dizziness, blurry vision and fatigue, can be unpredictable and often flare up during warm weather. High temperatures and humidity can cause a temporary, slight elevation in body temperature, which impairs nerves and can potentially worsen symptoms.
“The negative effects of temperature and humidity are generally temporary, but they can make the symptoms of MS worse and make it difficult to accomplish everyday tasks or enjoy activities outside,” said Carrie Lyn Sammarco, DrNP, FNP-C, MSCN, nurse practitioner in the NYU Langone Medical Center Multiple Sclerosis Comprehensive Care Center.
If you or someone you care for is living with MS, what can you do to beat the heat?
1. Dress lightly. Clothing can make all the difference. Look for lightweight, open-weave fabrics that “breathe” by letting air flow in and out more easily. Also, protect yourself from the sun’s harsh rays by wearing a hat or other protective covering.
2. Hydrate. Drink plenty of cool fluids. Having a cold drink or summer treat, like an ice pop, can often provide temporary relief. “I often freeze a water bottle the night before participating in an outdoor activity so I know I’ll have a cool drink quickly available,” said Ms. Booker.
3. Stay indoors. It may seem obvious, but sometimes the best way to beat the heat is to avoid it altogether! Chill out inside an air-conditioned space, sit in front of a fan or head out to your local movie theater to see the latest flick.
4. Take a dip. “Exercising in a non-heated pool is a great way to stay both active and cool during warm months and something I often recommend to my patients living with MS,” said Dr. Sammarco.
5. Ask for help. The unpredictability of MS symptoms, especially in the heat, may mean you need to ask for help sometimes. Check out a new online resource, GatherMS.com, that provides links to existing, everyday services — from grocery delivery to free transportation. Ms. Booker, who serves as a spokesperson for GatherMS, uses the resource to help her accomplish daily tasks when the heat gets her down.
No matter how you choose to stay cool, talk to your doctor for the best advice on managing your MS year round, especially during the warmer months.
Affecting about 400,000 people in the United States, multiple sclerosis can display an unpredictable mix of physical, cognitive and emotional symptoms that vary from person to person and can change over time. An FDA-approved medicine that targets specific B cells in the immune system, with a proven ability to slow the worsening of disability with a favorable benefit-risk profile, is now available to help in the treatment of those suffering from multiple sclerosis.
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