(BPT) - It's the sixth-leading cause of death in the United States, affects more than 5 million Americans and one out of every three seniors will die from it. Yet misconceptions surround Alzheimer's disease. Contrary to what many people think about Alzheimer's, it's not a normal part of growing older. And while there's not yet a way to prevent, cure or even slow the progression of the disease, people with Alzheimer's can benefit from detecting it early. During June - Alzheimer's & Brain Awareness Month - the Alzheimer's Association is encouraging everyone to learn the truth about Alzheimer's disease. "Misunderstanding crucial facts about the disease can have consequences that can lead to stigma, delayed medical attention and inadequate support for caregivers," says Ruth Drew, director of family and information services, Alzheimer's Association. "Greater understanding of Alzheimer's is urgently needed given the dramatic impact of the disease. It devastates too many families for it to remain a mystery. We need everyone to know the truth about Alzheimer's so we can bridge current gaps and build greater support toward advancing treatments and finding a cure." Debunking common myths Alzheimer's is most often associated with memory loss, but the truth is the disease can appear through a variety of signs and symptoms. A progressive and fatal disease, Alzheimer's attacks the brain, killing nerve cells and brain tissue, which affects a person's ability to remember, think and plan. While the majority of people who have Alzheimer's are seniors, it can also affect people in their 30s, 40s and 50s - a form of the disease known as younger-onset Alzheimer's. About 5 percent of people with the disease have younger-onset Alzheimer's. Everyone is, technically, at risk of developing Alzheimer's, but certain groups have elevated risks; African-Americans are twice as likely as whites and Hispanics one and a half times as likely to develop Alzheimer's. Nearly two-thirds of all people who have Alzheimer's are women. Empowering information Every 66 seconds, someone in the U.S. develops Alzheimer's, according to the Alzheimer's Association. Detecting the disease early may help the person with Alzheimer's, caregivers and loved ones in multiple ways. People who receive an early diagnosis may have more time to explore treatments that could help relieve some symptoms, and help them stay independent longer. They may be able to participate in a clinical drug trial to help advance Alzheimer's research. Resources such as Alzheimer's Association TrialMatch can help you find current studies. Detecting Alzheimer's early can also give people with the disease, their caregivers and loved ones more time to plan for the future. If you are diagnosed in the early stages of the disease, you may be able to participate in decisions about your care, living arrangements, and financial and legal matters. Only a doctor can accurately diagnose Alzheimer's disease, but the Alzheimer's Association has developed 10 warning signs and symptoms that may help you decide it's time to consult a physician, including: * Memory loss that disrupts daily life. * Challenges in planning and solving problems. * Difficulty completing familiar tasks. * Confusion over time or place. * Trouble understanding visual images or spatial relationships. * New problems with spoken or written words. * Misplacing things and not being able to find them by retracing your movements. * Decreased or poor judgment. * Withdrawal from others at work or in social situations. * Changes in mood or personality. "If a person is having trouble doing something that they routinely did for years or they demonstrate a significant shift in personality that lasts over time - those are warning signs that need to be explored," Drew says. "Too often people dismiss these changes as stress or having too much to do, but when they persist over time, it's best to get it checked out. Ignoring the situation is the worst way of handling it." To learn more about Alzheimer's disease and to find resources for caregivers, families and people living with the disease, visit www.alz.org, the website of the Alzheimer's Association. (BPT) - There’s been a lot of attention recently on the effects of sports-related brain injuries. However, PseudoBulbar Affect (PBA), a neurologic condition that causes uncontrollable, sudden outbursts of crying and/or laughing in people with brain injuries or certain neurologic conditions, is absent from the dialogue. An estimated 7 million Americans suffer from PBA, but awareness is low and many people don’t know they have it.
A recent survey from the Gridiron Greats Assistance Fund assessed the prevalence and impact of PBA symptoms in former professional football players. Ninety-nine percent of all players had experienced head trauma or injury during their football career. And more concerning is that a third of these players admit to experiencing symptoms consistent with PBA; and most were unaware that PBA symptoms may result from head injury. PBA is not limited to sports-related brain injury; it can also occur in people with brain injuries from other causes like car accidents or falls, or certain other neurologic conditions such as Alzheimer’s disease or other dementias, stroke, traumatic brain injury (TBI) or multiple sclerosis. PBA episodes may occur several times a day and last from seconds to minutes, can be exaggerated or don’t usually match what a person is feeling on the inside, and can occur spontaneously, often with no clear trigger. Additional findings from the survey include: * The majority of the former players surveyed were aware of symptoms like memory loss (73 percent), difficulty thinking (60 percent), and headache (60 percent) as a result of brain injury. However, few were aware of PBA-like symptoms. * Among former players surveyed with PBA-like symptoms, the greatest impact of these symptoms appears to be on spending time with family, maintaining a marriage, working and being able to participate in social activities. * Only 16 percent of former players reporting any PBA-like symptoms had discussed their symptoms with a health care professional, and just over half of them received any diagnosis or explanation for their symptoms. * Common reasons for not reporting crying or laughing episodes to a physician were “thought it was just depression” (29 percent) or “too embarrassed to mention” (25 percent). “People who suffer from PBA may find their symptoms challenging, and suffer an emotional toll. PBA can negatively impact social interactions, and sometimes these crying or laughing episodes are so interpersonally disruptive for people that they may interfere with their normal activities,” says Dr. Greg O’Shanick, National Medical Director Emeritus of the Brain Injury Association of America. “The good news is PBA is treatable. People who have, or think they may have PBA should talk to their doctor about ways to manage their symptoms.” For more information about PBA and the survey visit www.TacklePBA.org or talk to your doctor. |
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