While all of us have experienced the dull pain of a headache and some know the recurrent pulse and throbbing of migraine, few people can understand the severity of pain associated with cluster headache, also known as “suicide headache.”
(BPT) - While all of us have experienced the dull pain of a headache and some know the recurrent pulse and throbbing of migraine, few people can understand the severity of pain associated with cluster headache, also known as “suicide headache.”
What is cluster headache?
Cluster headache is an extremely painful primary headache disorder characterized by recurring unilateral attacks, or attacks that occur on one side of the head. It is called “cluster” headache because headaches typically occur in bouts (or “clusters”) for 6 to 12 weeks, often at the same time each year or day, and are more frequent at night. It begins as sharp pain centered at the eye, temple or forehead, and can be as brief as 15 minutes or as long as several hours. Attacks can strike up to 8 times a day.
The condition, which affects about one to two people in every 1,000, predominantly occurs in males, with symptoms typically manifesting by the age of 30. Those at greater risk of cluster headache include heavy smokers and individuals with a family history of the condition.
“Cluster headache is one of the most painful conditions an individual can experience, known for being potentially more excruciating and debilitating than migraine,” said Stephen Silberstein, M.D., from the Jefferson Headache Center at Thomas Jefferson University in Philadelphia, Pennsylvania. “Sadly, patients diagnosed with cluster headache commit suicide twenty times more than the national average as the pain can be described as unbearable.”
Diagnosis and treatment
Unfortunately, diagnosis of cluster headache may be delayed significantly due to patients and physicians mistaking the end of a bout for resolution of a separate, standalone condition.
Historically, even after the proper diagnosis is made, there have been very few viable therapies for cluster headache, making prevention and treatment strategies a challenge. While the exact cause of cluster headache is unknown, it is typically treated with injectable sumatriptan, a combination of oxygen and various drugs and/or nerve blocks. These methods are associated with barriers to use including a myriad of pharmaceutical side effects. Not surprisingly, 79 percent of patients have been dissatisfied with available treatment options.
Today, patients now have a novel treatment option called gammaCore®(nVNS). gammaCore, the first non-invasive vagus nerve stimulation therapy applied at the neck for the acute treatment of pain associated with migraine and episodic cluster headaches in adult patients, offers a way to treat symptoms without many of the side effects and dose limitations observed with commonly prescribed treatments or the need for invasive and costly procedures. Patients prescribed gammaCore can have reliable access to treatment for up to four cluster attacks per day for 30 days.
“gammaCore has shifted the paradigm by allowing patients to self-administer non-invasive vagus nerve stimulation therapy for acute treatment of cluster headache, resulting in the reduction of pain,” notes Dr. Silberstein. “gammaCore’s efficacy and safety profiles, along with its self-administered mode of delivery, have the potential to not only reduce the side-effect burden associated with other medications but also bring much needed relief to patients.”
For more information on cluster headache and treatment with gammaCore (non-invasive vagus nerve stimulator), please visit http://gammacore.com/.
Important Safety Information
gammaCore (non-invasive vagus nerve stimulator) is indicated for the acute treatment of pain associated with episodic cluster headache and migraine in adult patients.
gammaCore is available by prescription only. U.S. Federal Law restricts this device to sale by or on the order of a licensed healthcare provider.
 *Survey conducted in October 2016 to assess the impressions and perspectives on current treatments and interest in new acute treatment options. A total of 291 subjects participated in the survey, with 177 of them suffering from episodic cluster headaches and 111 suffering from chronic cluster headaches, and 3 patients refrained from answering this question.
To help shed light on the growing national problem with opioid drugs, Dr. W. Michael Hooten, a Mayo Clinic anesthesiologist and Pain Clinic specialist, lends his expert insight on what people need to know about opioids.
(BPT) - While a decade ago you may not have heard much about opioids, today they make headlines daily. The nationwide epidemic crosses generations and socioeconomic lines, and it's affecting your family, friends and neighbors.
"Opioids have long been used clinically to treat pain, but prior to the 1990s they were primarily reserved for patients with a limited life expectancy, such as for someone with cancer or in a hospice setting," says Dr. W. Michael Hooten, a Mayo Clinic anesthesiologist and Pain Clinic specialist. "The potential problems associated with long-term use were secondary considerations."
To help shed light on this growing national problem, Dr. Hooten lends his expert insight on what people need to know about opioids.
Opioids are prescribed for various reasons
Opioids are used to treat a variety of pain disorders. While they are commonly prescribed after an operation, opioids are also used to treat a host of chronic pain conditions including musculoskeletal, abdominal, pelvic, and neuropathic pain.
Length of use varies
"Following surgery, up to one in four patients may use opioids longer than anticipated," says Dr. Hooten. "How long, exactly, depends on several clinical factors."
He notes that after an operation, a patient might use opioids to manage acute pain for three to five days.
"When opioids are used for acute postoperative pain, patients should try to use the lowest possible dose." After this short time period, opioids should be replaced with non-opioid pain medicines including Tylenol scheduled to be taken every six hours."
There are alternatives for pain management
There are many alternative options for chronic pain. Dr. Hooten suggests talking with your doctor about:
* Non-opioid analgesics (non-opioid pain medications).
* Interventional treatments such as image-guided spine injections or nerve blocks. * Acupuncture.
* Low-impact exercise such as walking, yoga, Pilates. Consider working with a physical therapist to develop a structured exercise program.
* For advanced pain treatment, spinal-cord stimulation can disrupt the pain stimuli and provide sustained pain relief.
* Work with a pain psychologist who can help teach individuals how to use specialized behavioral and cognitive techniques that could lead to improvements in daily functioning and quality of life.
Opioids can be deadly if misused
"Approximately 90 people per day die in the U.S. from a prescription opioid and/or an illicit opiate overdose," says Dr. Hooten. Many of those are accidental overdoses. “People who take prescription opioids will inadvertently mix them with benzodiazepines (e.g., Valium and Xanax). Dr. Hooten warns that these two drug classes should never be taken together, as the combination can suppress the central nervous system and put the individual at risk of an accidental overdose.
Addiction can happen to anyone
As Dr. Hooten notes, “No one plans to get addicted, but it happens. Using opioids requires a high level of vigilance for the signs and symptoms of addiction."
There are many signs of over-reliance or misuse that families should be aware of. These include an increased preoccupation with the drug, concern about the timing of the next dose or refill, hiding use of the drug, and signs of intoxication like slurred speech and excessive sleep.
If you notice these warning signs, alert your loved one about your concerns. "This might be enough to prompt a change," says Dr. Hooten. "Otherwise relay this information to the prescriber and tell them what’s going on. They can take the correct next steps."
For more information on pain medication and alternatives, or to make an appointment, visit www.mayoclinic.org.
(BPT) - Opioids often are the go-to pain killer for everything from back aches and injuries to post-surgical pain, as evidenced by the more than 300 million prescriptions written each year. While they can help with moderate to severe short-term pain, opioids are not without risk. Because they have significant side effects, including an increased risk of addiction and overdose, the American Society of Anesthesiologists suggests those who take opioids ask some tough questions — including if it is time to consider alternatives.
Kathleen Callahan understands the dilemma. She suffers from a condition that causes painful cysts that required multiple surgeries resulting in post-surgical and chronic pain for which she took opioids for years. Despite being on a high dose of opioids, she still had chronic pain. So she turned to Anita Gupta, D.O., Pharm.D., a physician anesthesiologist who specializes in pain medicine.
“When I was on opioids long-term I couldn’t function, couldn’t be involved in my children’s lives and my work was suffering,” said Kathleen. “Dr. Gupta helped me manage my pain so life is livable. Now I exercise, go out with friends and go to my kids’ activities.”
“Kathleen and I had some difficult discussions. I didn’t think the medications were helping her anymore and I was truthful with her,” said Dr. Gupta. “She asked some hard questions, and I helped her move forward and cope with her pain. Since she’s been opioid-free Kathleen is vibrant and energetic. She has her life back.”
If you are taking opioids or your physician has prescribed them, the American Society of Anesthesiologists suggests asking yourself (and your physician) some tough questions:
* Are opioids affecting my quality of life? Opioids have many side effects, ranging from severe constipation, mental fogginess and nausea to depression. Kathleen said she was “exhausted, cranky, depressed, constipated and gaining weight.” She realized the side effects of opioids were worse than the pain itself, motivating her to seek other options.
* What are my concerns about taking opioids — or stopping them? With the media attention surrounding opioid risks, many people worry they:
- are being judged by others
- may become addicted or overdose
- won’t be able to control their pain if they stop taking opioids
Ask your physician about obtaining naloxone, a drug that can reverse an overdose. If you take opioids when you don’t have pain or use more than directed, you may develop a dependence. Talk to your physicians about alternatives to manage your pain.
* Is it time to consider other methods of pain management? Opioids are most effective in the short term. If they are taken for chronic pain, they should be part of a “multimodal” plan that includes other methods of pain management, including:
- Injections or nerve blocks, which can short circuit muscle and nerve pain.
- Electrical stimulation and spinal cord stimulation devices that send electrical impulses to block pain.
- Physical therapy, which strengthens muscles to improve function and decrease pain. Whirlpools, ultrasound and massage can help, too.
- Alternative therapies, such as acupuncture, biofeedback, meditation, deep breathing and relaxation, which help you learn how to ease muscle tension.
* What type of physician can best help manage my pain? If you have severe or ongoing pain, be sure to see a physician who specializes in pain management, such as a physician anesthesiologist. These specialists have received four years of medical school and additional training in a medical specialty, followed by an additional year of training to become an expert in treating pain. They have the expertise to best help you manage your pain.
“If I was still on opioids I would be overweight, inactive, not involved in my children’s lives and depressed,” said Kathleen. “When you have a physician like Dr. Gupta who you trust and who shows you there’s another way, it’s just amazing. It’s night and day.”
For more information, download ASA’s Asking the Hard Questions About Opioids. To learn more about the critical role physician anesthesiologists play before, during and after surgery, visit www.asahq.org/WhenSecondsCount.
America is in the midst of an ongoing opioid epidemic affecting families across the country. Reports show that there are almost 80 opioid-related overdoses a day, amounting to more than 28,000 deaths annually. Accordingly, it is increasingly important that responders understand how to prevent death from overdose, including knowing how to use naloxone, the opioid overdose reversal medication.
Overcoming the Opioid Epidemic
(Family Features) America is in the midst of an ongoing opioid epidemic affecting families across the country. Reports show that there are almost 80 opioid-related overdoses a day, amounting to more than 28,000 deaths annually.
This figure continues to climb as over 2.1 million people in the United States suffer from substance use disorders related to prescription opioid pain relievers, according to the National Institute on Drug Abuse. Additionally, the rise of synthetic opioids like fentanyl, W-18 and carfentanil are threats to those already using opiates as the epidemic worsens.
Where do opioid overdoses occur?
Data from the Centers for Disease Control shows that 77 percent of opioid overdose related deaths occur outside of a medical setting and 56 percent occur in private homes, meaning family or friends must often be the first to take action in an emergency situation. Accordingly, it is increasingly important that responders understand how to prevent death from overdose, including knowing how to use naloxone, the opioid overdose reversal medication.
What does naloxone do?
Naloxone, the antidote that reverses an opioid overdose, works by neutralizing the opioid receptors in the brain, allowing an overdosed person to breathe again moments after it is administered. It’s been used in ambulances and hospital settings for decades and is now available for people to use in their homes or other remote areas.
According to the Centers for Disease Control and Prevention, more than 10,000 reversals of overdoses with naloxone are conducted by non-medical bystanders. Without having a solution in the hands of those closest to opioid-related overdoses, lives are left hanging in the balance while waiting for emergency medical services. However, there is an FDA-approved naloxone nasal spray designed for use by laypeople, like friends and family, who are not medically trained. It’s needle-free and requires no training or assembly to use while providing a strong enough dose to help reverse opioid-related overdoses. Naloxone is only effective in opioid-related overdoses and does not affect a person without opioids in their body.
What can you do?
A majority of states have issued standing orders for FDA-approved naloxone products, which permit pharmacies to dispense the nasal spray without a physician’s prescription. If you or someone you know is susceptible to an opioid-related overdose, whether caused by illicit drugs, like heroin, or prescription painkillers, it is important to prepare for an emergency overdose situation. By having naloxone on hand, you can save a life when every second matters.
Learn more about naloxone at getnaloxonenow.org.
Photo courtesy of Getty ImagesSOURCE:
With concerns mounting about the prevalence of opioid use and abuse in the U.S., a new study validates the effectiveness of acupuncture and other non-drug health therapies for pain. The National Institute of Health’s National Center for Complementary and Integrative Health compiled evidence on how complementary health therapies – including acupuncture, yoga, tai chi, massage therapy and relaxation techniques – are effective in treating chronic pain.
Effective, Opioid-Free Pain Management Options
(Family Features) New research is giving pain sufferers a dose of good news. With concerns mounting about the prevalence of opioid use and abuse in the U.S., a new study validates the effectiveness of acupuncture and other non-drug health therapies for pain.
The National Institute of Health's National Center for Complementary and Integrative Health compiled evidence on how complementary health therapies - including acupuncture, yoga, tai chi, massage therapy and relaxation techniques - are effective in treating chronic pain.
The top five pain conditions commonly treated in primary care settings - back pain, osteoarthritis, neck pain, severe headaches and migraine, and fibromyalgia - were evaluated. The study showed that acupuncture in combination with yoga is the most effective therapy for back pain and acupuncture with tai chi is the most effective treatment for osteoarthritis pain in the knee.
"As addictions to, and deaths from prescription opioids such as oxycodone, hydrocodone and methadone continue to rise, raising awareness on complementary and alternative pain therapies like acupuncture is more important than ever," said Kory Ward-Cook, Ph.D., Chief Executive Officer of the National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM). "The research from National Center for Complementary and Integrative Health brings greater attention to the use of acupuncture to treat and relieve chronic pain."
Experts in the field are pointing to the study, which was published in the "Mayo Clinic Proceedings" journal, as a pivotal opportunity in shifting how patients explore treatment for their pain management. The findings support the benefits of non-drug approaches to help those with chronic pain more safely manage their conditions without the harmful side effects of opioids.
The study explored seven widely-used non-drug treatments:
Acupuncture: Using practices derived from traditional Chinese medicine, practitioners stimulate specific points on the body, most often by inserting thin needles through the skin. Nationally Board-Certified practitioners, whose credentials can be verified through the NCCAOM, are affirmed to have the education and training necessary to competently deliver acupuncture therapy. To learn more or find a NCCAOM board-certified practitioner in your area, visit nccaom.org.
Spinal manipulation or osteopathic manipulation: This approach involves applying controlled force from hands or a device to move a joint past its normal range of operation with the goal of improving health.
Massage therapy: Using hands (or sometimes forearms or elbows), therapists manipulate muscles and soft tissue to relieve tension and pain.
Tai chi: These mind and body practices involve a series of postures and movements integrated with mental focus, breathing and relaxation techniques.
Yoga: A generally low-impact approach to physical well-being, yoga spans physical postures, breathing exercises and meditation. Practicing certain sets of yoga poses may help reduce pain.
Relaxation techniques: There are several types of relaxation techniques, including meditation, that strive to bring the body to its natural state with slower breathing, lower blood pressure and a feeling of increased well-being.
Natural product supplements: Certain dietary supplements such as chondroitin, glucosamine, methylsulfonylmethane (MSM), S-adenosyl-L-methionine (SAMe) and omega-3 fatty acids are commonly used to help treat inflammation often associated with pain.
"Opioids are dangerous, highly addictive and do not treat chronic pain - only mask it," said Bill Reddy, Director of the Integrative Health Policy Consortium and a NCCAOM-certified and licensed acupuncturist. "To solve the opioid epidemic, we must apply the most powerful, innovative approaches to address the root cause of pain within the human body."
Photo courtesy of Getty Images
Keep on cruising with a regular maintenance schedule for your joints
(BPT) - Whether it's a brand-new Bentley or a classic 1970 Mustang, most people have a car they dream about. If they're lucky enough to own it someday, you better believe they're going to take care of it. Regular maintenance is an essential part of keeping a vehicle in tip-top shape. The same is true of the human body, particularly the joints.
"Prevention is the only thing that actually prolongs the health of your joints, similar to the care of a machine," says Matt Johnson, health and performance expert and president of On Target Living. "If you want something to last as long as possible, and to cost as little as possible over the long run, you have to do maintenance, checkups, and change the oil. Taking care of your body is no different. If you do, your joints can last until you're 80, 90, or even 100 without tendon or ligament issues."
Johnson notes that joint issues are some of the most common concerns he sees in his practice. These issues can happen at any age, although many start to manifest between the ages of 40 and 50, after years of wear and tear cause pain and inflammation.
Johnson's mantra: If you take care of the body it will take care of you. To help people of any age maintain joint health, he provides this four-point joint maintenance plan.
The first part of healing the joints is to rest the joints. Massage, meditation, light yoga, stretching, and cool baths are great ways to rest the joints. Additionally, quality sleep each night is essential. (Quick tip: Take an epsom salt bath once a week.)
2. Healing Nutrients
Studies show that omega-3 fats can help support joint health by limiting inflammation after exercise and boosting hormones that help the body heal. Take a daily, high-quality omega-3 supplement like Nordic Naturals that has been third-party tested for purity, and is known for its great, non-fishy taste.
Superfood herbs and spices help the body get maximum nutrients in minimal amounts. For example, curcumin and bromelain are both great for helping joint pain and repair. Remember, limited processing of the product is ideal for optimal absorption.
4. Exercise and body alignment
You can't have optimal joint function if the body is out of alignment. There are five key joint checkpoints: ankle, knee, hip, shoulder and neck. This is where you start to achieve perfect posture, after which you can focus on strengthening the large muscles.
"The best age is always now," says Johnson. "Start as soon as possible and think about it like you take care of a car or nice jewelry. Joints are meant to last as long as you live. The key is to take care of them with quality nutrition, normal exercise, and adequate rest."
With sales of prescription opioids nearly doubling since 1999, America is in the midst of an opioid epidemic. Rather than opting for pain medication – which can cause side effects such as depression, overdose and addiction – physical therapists can provide a safer alternative. With physical therapy, patients get to play an active role in their recovery.
Fixing the Pain Problem
Safe, effective options for long-term treatment
(Family Features) America is in the midst of an opioid epidemic. Sales of prescription opioids have nearly quadrupled since 1999. According to the Centers for Disease Control and Prevention, in 2012 alone enough opioid prescriptions were written for “every American adult to have their own bottle of pills.”
Prescription opioids – medications that reduce pain by interrupting pain signals to the brain – only mask the sensation of pain, and they come with side effects including depression, overdose and addiction, plus withdrawal symptoms when stopping opioid use. Pain relief doesn’t have to come in a bottle, however. Physical therapists can provide a safe, drug-free alternative for treating pain.
When to Choose Physical Therapy
The American Physical Therapy Association, through its national #ChoosePT campaign, is reminding patients that they have the right to choose their method of pain treatment. Physical therapists treat pain through movement and patients get to play an active role in their recovery.
Based on the CDC guidelines, patients should choose non-opioid alternatives, such as physical therapy, when:
The risks of opioid use outweigh the rewards. “Experts agreed that opioids should not be considered first-line or routine therapy for chronic pain,” according to the CDC. “Given the substantial evidence gaps on opioids, uncertain benefits of long-term use and potential for serious harm, patient education and discussion before starting opioid therapy are critical so that patient preferences and values can be understood and used to inform clinical decisions.”
Physical therapists can play a valuable role in the patient education process, including setting realistic expectations for recovery with or without opioids. As the guidelines note, even in cases when evidence on the long-term benefits of non-opioid therapies is limited, “risks are much lower” with non-opioid treatment plans.
Pain or function problems are related to low-back pain, hip or knee osteoarthritis or fibromyalgia. The CDC cited “high-quality evidence” supporting exercise as part of a physical therapy treatment plan for those familiar conditions.
Opioids are prescribed for pain. Even in situations when opioids are prescribed, the CDC recommends that patients should receive “the lowest effective dosage” and opioids “should be combined” with non-opioid therapies, such as physical therapy. Clinicians should continue opioid therapy only if there is “meaningful improvement in pain and function that outweighs risks to patient safety.”
Pain lasts 90 days. At this point, the pain is considered “chronic” and the risks for continued opioid use increase. An estimated 116 million Americans are living with chronic pain, but the danger of masking pain with prescription opioids is clear. More than 165,000 people in the United States have died from opioid pain medication-related overdoses since 1999, and every day more than 1,000 people are treated in emergency departments for misusing prescription opioids.
1. Pain is output from the brain. While researchers used to believe that pain originated within the tissues of the body, newer evidence indicates that pain does not exist until the brain determines it does. The brain uses a virtual “road map” to direct an output of pain to tissues that it suspects may be in danger. This process acts as a means of communication between the brain and the tissues of the body to serve as a defense against possible injury or disease.
2. The degree of injury does not always equal the degree of pain. Research has demonstrated that people experience pain in individual ways. While some people experience major injuries with little pain, others experience minor injuries with a lot of pain.
3. Diagnostic imaging (MRIs, X-rays, CT scans) results may not show the cause of pain. A 2015 study in Spine, which analyzed MRI results of more than 1,200 individuals ages 20-70 who had no symptoms of lower-back pain, found that 87.6 percent suffered from bulging discs. Even most subjects in their 20s had bulging discs – 73.3 percent of males and 78 percent of females, respectively.
4. Psychological factors, such as depression and anxiety, can make pain worse. Pain can be influenced by many different factors, such as psychological conditions. A recent study in the Journal of Pain showed that psychological variables that existed prior to a total knee replacement were related to a patient’s experience of long-term pain following the operation.
5. Your social environment may influence your perception of pain. Many patients state their pain increases when they are at work or in a stressful situation. Pain messages can be generated when an individual is in an environment or situation that the brain interprets as unsafe. It is a fundamental form of self-protection.
6. Understanding pain through education may reduce your need for care. A large study conducted on military personnel demonstrated that those who were given a 45-minute educational session about pain sought care for lower-back pain less than their counterparts.
7. The brain can be tricked into developing pain in prosthetic limbs. Studies have shown that the brain can be tricked into developing a “referred” sensation in a limb that has been amputated, causing a feeling of pain that seems to come from the prosthetic limb – or from the “phantom” limb. The sensation is generated by the association of the brain’s perception of what the body is from birth (whole and complete) and what it currently is (post-amputation).
8. The ability to determine left from right may be altered when you experience pain. Networks within the brain that assist you in determining left from right can be affected when you experience severe pain. If you have been experiencing pain and have noticed your sense of direction is a bit off, it may be because the part of the brain that details a path to each part of the body may be impaired.
9. There is no way of knowing whether you have a high pain tolerance or not. While some people claim to have a “high tolerance” for pain, there is no accurate way to measure or compare pain tolerance among individuals. While some tools exist to measure how much force you can resist before experiencing pain, it can’t be determined what your pain “feels like.”
If you or a loved one needs help managing pain, talk with your health care provider about safe alternatives to opioids. Additional information on the #ChoosePT campaign, including a pain self-assessment that patients can use to facilitate conversations about their care, is available at MoveForwardPT.com/ChoosePT.
Photo courtesy of Getty Images (female physical therapist with seated male patient)
(BPT) - Like many people facing a chronic disease diagnosis, Renee Rodriguez felt utterly alone. After a lifetime of battling illnesses and infections, Rodriguez's immunologist told her she had Common Variable Immune Deficiency (CVID), a type of Primary Immunodeficiency (PI). Rodriguez had never heard of PI, and she certainly didn't know anyone who had it. PI is a group of nearly 300 rare, chronic disorders in which part of the body's immune system is missing or functions improperly.  
Rodriguez battled these infections her whole life, but she never considered there might be something wrong. As a school teacher, Rodriguez was always around children and simply figured she was more susceptible to germs than others. It wasn't until Rodriguez began experiencing severe joint pain - often with flare ups leaving her bedridden - that she began seeking answers.
"When I learned I had PI and may need treatments for the rest of my life, I didn't know what it meant for my future. I needed answers, and I wanted to talk to somebody who understood what I was going through," Rodriguez says.
Rodriguez's quest for answers quickly led her to MyIgSource, a patient support program from Baxalta. She called the MyIgSource patient support line hoping someone could point her in the right direction.
"As a newly diagnosed patient, that first phone call was more comforting than I could have ever imagined," Rodriguez says. "Suddenly, I had access to education and to a group of people who would support my journey and understood what I was going through because they had been there. I knew they were sincere about helping me."
MyIgSource is a program designed to support patients and caregivers through each step of their journey with PI. A team of Patient and Nurse Advocates* are equipped to address patient needs by providing access to valuable educational tools, clinical support for Baxalta immune globulin (Ig) products, and insurance and financial support. Most importantly, the patient advocates are skilled in building strong one-on-one relationships with patients and caregivers to connect them to their community and provide unbiased emotional support regardless of their treatment, reinforcing that they are not alone.
"Community connection is critical in coping with chronic disease. MyIgSource was my lifeline during a formative time in my PI journey," Rodriguez says.
Because of her experience, Rodriguez was compelled to give back to others who were facing a similar diagnosis. She was thrilled to learn of the opportunity to join the MyIgSource team as a Patient Advocate to tell her story and help inspire others.
"After facing a scary diagnosis, it was life-changing to know there was somebody on the other line who I could truly depend on and trust. It is incredibly rewarding to get to be that person on the other line now. I'm so proud to be a part of the MyIgSource team. Every day I can give back a little bit of what was given to me, and that's priceless."
For more information about PI and MyIgSource, visit www.MyIgSource.com.
*Nurse advocates cannot provide medical advice. For medical questions, please consult your doctor.
 Blaese RM, Bonilla FA, Stiehm ER, Younger ME, eds. Patient & Family Handbook for Primary Immunodeficiency Diseases. 5th ed. Towson, MD: Immune Deficiency Foundation; 2013.
 Bousfiha A, Jeddane I, AlHerz W, et al. The 2015 IUIS phenotypic classification for primary immunodeficiencies. J Clin Immunol. 2015; 35(8): 727-738.
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