There is little information available about epithelioid sarcoma. Patients, advocates, doctors and researchers across the United States are aiming to educate people about this ultra-rare cancer and the unmet need for an effective, tumor-specific treatment. Consider these facts about ES.
The Rarest of the Rare
What to know about a cancer you may not have heard of
(Family Features) A woman celebrating her 40th birthday, a young boy starting second grade or a college grad about to begin his career. All three could develop a rare form of cancer known as epithelioid sarcoma (ES), a form of soft-tissue sarcoma.
What are Soft-Tissue Sarcomas and What is Epithelioid Sarcoma?
How Rare is Rare?
According to the American Cancer Society, a rare cancer is defined as fewer than six new diagnoses per 100,000 people per year.
ES is an ultra-rare cancer. According to available epidemiology and case reports, it is estimated about 600 people are properly diagnosed in the U.S. and Europe each year.
What are the Most Common Types of ES and How Do They Impact Diagnosis?
Dealing with a Diagnosis?
For people faced with a sarcoma diagnosis, it’s important to get a second opinion from a sarcoma specialist. These specialists have extensive knowledge of STS and can determine what form of sarcoma one may have, what stage it is and the best course of treatment. The specialist may confirm the diagnosis with a physical examination, a scan or a tissue sample (biopsy) of the area.
It’s common to feel a range of emotions after a diagnosis of ES, according to Clear View Health Partners, including:
What Treatment Options are Available?
For patients with early stage ES, many elect to have surgery to remove the tumor, which may precede or be followed by radiation therapy or chemotherapy treatment, according to the Journal of Clinical and Aesthetic Dermatology. If the cancer returns or spreads, a patient may undergo radiation therapy and chemotherapy. New treatment options are being studied through clinical research, which is why seeking a specialist in the field is important if one is faced with a diagnosis.
As with many cancers, early detection is important and can increase survival or successful treatment. Typically, the distal form of ES is associated with more favorable survival rates than the proximal form.
4 Things to Do to Address ES Today
1. Don’t ignore your bumps and lumps, see a doctor as soon as possible.
2. Learn more about epithelioid sarcoma and its symptoms.
3. Seek a second opinion.
4. Find support if you’re faced with a diagnosis.
An ES Diagnosis Journey
In the spring of 2008, Maria Voermans’ 4-year-old daughter requested an “airplane ride,” and as Voermans lifted the young girl up with her legs, she had to make an “emergency landing” because of some sudden and significant pain in her upper right thigh.
After a few months, the pain persisted. Voermans continued to jog and play sand volleyball, thinking nothing of it. At the recommendation of her primary care physician, she took some anti-inflammatories and tried to rest, which wasn’t easy to do as a single mother of two young children.
Two more months went by and her leg caused increasing problems. She could feel something in her leg, but never considered it a “lump” because it was not visible on the outside. Voermans took matters into her own hands and visited a sports medicine orthopedic specialist for further testing.
An MRI found a mass in her right leg and she was referred to one of the few musculoskeletal oncologists in Wisconsin, her home state. He ordered a biopsy, which on Voermans’ youngest daughter’s third birthday confirmed her worst fear: it was a rare form of cancer called proximal-type epithelioid sarcoma, and it was stage three. Her biggest concern was not living to experience future holidays, birthdays, graduations and other life milestones with her daughters.
Voermans underwent chemotherapy, radiation therapy and had surgery to remove the tumor. As of July 2018, Voermans reports the cancer has not returned.
Today, she’s a wellness coordinator supporting other people diagnosed with cancer who are undergoing treatment or post-treatment. She’s able to use her own cancer journey to provide empathy to others, and it’s brought satisfaction to the whole experience.
Content courtesy of Epizyme, Inc.
Photo courtesy of Getty Images (Doctor talking to man)SOURCE:
Mental Health Awareness Month is the perfect time for people to consider the state of their mental health and that of their loved ones and friends. Family doctors from all over the U.S. and the American Academy of Family Physicians are calling on people to do just that. Join the movement today!
(BPT) - Mental health and emotional wellness affect every aspect of a person’s life, from work to family to leisure. One in five adults lives with mental illness, which can range from mild to severe. Many times, before mental illness is diagnosed, it can trigger physical symptoms.
Take, for example, 26-year-old Michael who suffered a construction work injury that started him on a vicious cycle of pain and feeling helpless. After being treated for the pain, he noticed red, flaky sores on his skin. His family doctor diagnosed him with depression-related psoriasis and together they worked out a treatment plan.
Then there’s Jennifer, a 35-year-old hair stylist, who showed the textbook signs of a heart attack: She couldn’t catch her breath, was sweating, and had a rapid heartbeat and nausea. After multiple tests in the ER costing thousands of dollars, she was diagnosed with acute anxiety. Her prescription? See her family doctor and determine the right course of treatment for her situation — both physical and emotional.
This mind/body connection is very real, complicated and many times, not well understood. That’s one reason why it’s important to have a family doctor who knows the patient and their family in the context of their community. Family doctors are on the front lines of diagnosing and treating mental health concerns. In fact, primary care physicians provide the majority of U.S. mental health services.
Mental Health Awareness Month is the perfect time for people to consider the state of their mental health and that of their loved ones and friends. Family doctors from all over the U.S. and the American Academy of Family Physicians are calling on people to do just that.
Join the movement. Go to familydoctor.org to learn:
* When and how to talk to your family doctor about mental health
* What your doctor can do for you
* How to prepare for an appointment and questions to ask your doctor
Download a guide to help start the conversation, including taking note of
* Physical, emotional or behavioral symptoms
* Any recent life changes
* Medications you are taking
Help start the conversation on talking to your family doctor about mental health and well-being online. Tell others about the resources on your social media channels using the hashtag #MentalHealthMatters. Don’t be afraid to reach out for help. Your family doctor is a good place to start.
To help shed light on the growing national problem with opioid drugs, Dr. W. Michael Hooten, a Mayo Clinic anesthesiologist and Pain Clinic specialist, lends his expert insight on what people need to know about opioids.
(BPT) - While a decade ago you may not have heard much about opioids, today they make headlines daily. The nationwide epidemic crosses generations and socioeconomic lines, and it's affecting your family, friends and neighbors.
"Opioids have long been used clinically to treat pain, but prior to the 1990s they were primarily reserved for patients with a limited life expectancy, such as for someone with cancer or in a hospice setting," says Dr. W. Michael Hooten, a Mayo Clinic anesthesiologist and Pain Clinic specialist. "The potential problems associated with long-term use were secondary considerations."
To help shed light on this growing national problem, Dr. Hooten lends his expert insight on what people need to know about opioids.
Opioids are prescribed for various reasons
Opioids are used to treat a variety of pain disorders. While they are commonly prescribed after an operation, opioids are also used to treat a host of chronic pain conditions including musculoskeletal, abdominal, pelvic, and neuropathic pain.
Length of use varies
"Following surgery, up to one in four patients may use opioids longer than anticipated," says Dr. Hooten. "How long, exactly, depends on several clinical factors."
He notes that after an operation, a patient might use opioids to manage acute pain for three to five days.
"When opioids are used for acute postoperative pain, patients should try to use the lowest possible dose." After this short time period, opioids should be replaced with non-opioid pain medicines including Tylenol scheduled to be taken every six hours."
There are alternatives for pain management
There are many alternative options for chronic pain. Dr. Hooten suggests talking with your doctor about:
* Non-opioid analgesics (non-opioid pain medications).
* Interventional treatments such as image-guided spine injections or nerve blocks. * Acupuncture.
* Low-impact exercise such as walking, yoga, Pilates. Consider working with a physical therapist to develop a structured exercise program.
* For advanced pain treatment, spinal-cord stimulation can disrupt the pain stimuli and provide sustained pain relief.
* Work with a pain psychologist who can help teach individuals how to use specialized behavioral and cognitive techniques that could lead to improvements in daily functioning and quality of life.
Opioids can be deadly if misused
"Approximately 90 people per day die in the U.S. from a prescription opioid and/or an illicit opiate overdose," says Dr. Hooten. Many of those are accidental overdoses. “People who take prescription opioids will inadvertently mix them with benzodiazepines (e.g., Valium and Xanax). Dr. Hooten warns that these two drug classes should never be taken together, as the combination can suppress the central nervous system and put the individual at risk of an accidental overdose.
Addiction can happen to anyone
As Dr. Hooten notes, “No one plans to get addicted, but it happens. Using opioids requires a high level of vigilance for the signs and symptoms of addiction."
There are many signs of over-reliance or misuse that families should be aware of. These include an increased preoccupation with the drug, concern about the timing of the next dose or refill, hiding use of the drug, and signs of intoxication like slurred speech and excessive sleep.
If you notice these warning signs, alert your loved one about your concerns. "This might be enough to prompt a change," says Dr. Hooten. "Otherwise relay this information to the prescriber and tell them what’s going on. They can take the correct next steps."
For more information on pain medication and alternatives, or to make an appointment, visit www.mayoclinic.org.
(BPT) - Bobby Barrera’s career as a Marine ended abruptly at age 21. While in Vietnam, on his first mission, a land mine explosion took his right hand at the wrist and left arm at the shoulder, and left him with severe burns over 40 percent of his body and face.
Coping with the physical challenges of his injuries and struggling to find a new purpose for life was almost easy compared to dealing with the psychological impact of war trauma: something that would remain with Bobby for the next 40 years.
Bobby went on to marry and have a family. His children had children, and he created a fulfilling and meaningful life for himself. He returned to college to earn a master’s degree in guidance and counseling. For nearly four decades, Bobby counseled veterans with mental health challenges caused by war and volunteered with DAV (Disabled American Veterans), a veterans service organization that helps veterans of all generations get the benefits and services they’ve earned. He went on to become the national commander of DAV in 2009. What Bobby didn’t realize — or want to admit — was that for more than 40 years, he was suffering from post-traumatic stress disorder (PTSD).
It wasn’t until Bobby and his wife moved to San Antonio, Texas, to retire that his PTSD symptoms became overwhelming. After moving, Bobby felt immediately lost. Being new in town, losing his network of friends, no longer working and coping with chronic pain triggered long-suppressed symptoms of PTSD. Soon, the nightmares began. Then came mood swings, increased anxiety, and feelings of isolation and hopelessness — and eventually, thoughts of suicide.
Bobby’s wife pushed him to seek help — which led to a PTSD diagnosis. He questioned how he could have overlooked his own signs of PTSD for so many decades, while helping countless other veterans who struggled with it.
PTSD symptoms are caused by experiencing traumatic events and not by an inherent individual weakness. Roughly 15 percent of Vietnam veterans are impacted by PTSD, and an estimated 20 percent of recent war veterans have symptoms of PTSD or depression. It can lead to a higher risk for unemployment, homelessness or suicide.
Bobby is learning how to cope with his diagnosis. He is meeting more people, getting involved at church and spending time with his family. He began to volunteer again. His recovery is ongoing. Bobby credits his wife for encouraging him to ask for help and believes that doing so gave him yet another chance at life.
If you are struggling with symptoms of PTSD, you are not alone. Resources are available at www.DAV.org/veterans/resources. If your situation is critical, please call the Veterans Crisis Line at 1-800-273-8255.
With concerns mounting about the prevalence of opioid use and abuse in the U.S., a new study validates the effectiveness of acupuncture and other non-drug health therapies for pain. The National Institute of Health’s National Center for Complementary and Integrative Health compiled evidence on how complementary health therapies – including acupuncture, yoga, tai chi, massage therapy and relaxation techniques – are effective in treating chronic pain.
Effective, Opioid-Free Pain Management Options
(Family Features) New research is giving pain sufferers a dose of good news. With concerns mounting about the prevalence of opioid use and abuse in the U.S., a new study validates the effectiveness of acupuncture and other non-drug health therapies for pain.
The National Institute of Health's National Center for Complementary and Integrative Health compiled evidence on how complementary health therapies - including acupuncture, yoga, tai chi, massage therapy and relaxation techniques - are effective in treating chronic pain.
The top five pain conditions commonly treated in primary care settings - back pain, osteoarthritis, neck pain, severe headaches and migraine, and fibromyalgia - were evaluated. The study showed that acupuncture in combination with yoga is the most effective therapy for back pain and acupuncture with tai chi is the most effective treatment for osteoarthritis pain in the knee.
"As addictions to, and deaths from prescription opioids such as oxycodone, hydrocodone and methadone continue to rise, raising awareness on complementary and alternative pain therapies like acupuncture is more important than ever," said Kory Ward-Cook, Ph.D., Chief Executive Officer of the National Certification Commission for Acupuncture and Oriental Medicine (NCCAOM). "The research from National Center for Complementary and Integrative Health brings greater attention to the use of acupuncture to treat and relieve chronic pain."
Experts in the field are pointing to the study, which was published in the "Mayo Clinic Proceedings" journal, as a pivotal opportunity in shifting how patients explore treatment for their pain management. The findings support the benefits of non-drug approaches to help those with chronic pain more safely manage their conditions without the harmful side effects of opioids.
The study explored seven widely-used non-drug treatments:
Acupuncture: Using practices derived from traditional Chinese medicine, practitioners stimulate specific points on the body, most often by inserting thin needles through the skin. Nationally Board-Certified practitioners, whose credentials can be verified through the NCCAOM, are affirmed to have the education and training necessary to competently deliver acupuncture therapy. To learn more or find a NCCAOM board-certified practitioner in your area, visit nccaom.org.
Spinal manipulation or osteopathic manipulation: This approach involves applying controlled force from hands or a device to move a joint past its normal range of operation with the goal of improving health.
Massage therapy: Using hands (or sometimes forearms or elbows), therapists manipulate muscles and soft tissue to relieve tension and pain.
Tai chi: These mind and body practices involve a series of postures and movements integrated with mental focus, breathing and relaxation techniques.
Yoga: A generally low-impact approach to physical well-being, yoga spans physical postures, breathing exercises and meditation. Practicing certain sets of yoga poses may help reduce pain.
Relaxation techniques: There are several types of relaxation techniques, including meditation, that strive to bring the body to its natural state with slower breathing, lower blood pressure and a feeling of increased well-being.
Natural product supplements: Certain dietary supplements such as chondroitin, glucosamine, methylsulfonylmethane (MSM), S-adenosyl-L-methionine (SAMe) and omega-3 fatty acids are commonly used to help treat inflammation often associated with pain.
"Opioids are dangerous, highly addictive and do not treat chronic pain - only mask it," said Bill Reddy, Director of the Integrative Health Policy Consortium and a NCCAOM-certified and licensed acupuncturist. "To solve the opioid epidemic, we must apply the most powerful, innovative approaches to address the root cause of pain within the human body."
Photo courtesy of Getty Images
Sleep is essential to maintain a healthy lifestyle, but sleep problems – such as sleep apnea, which is a serious breathing disorder that causes you to snore loudly and stop breathing up to hundreds of times a night – can hinder sleep quality and lead to other severe health complications, such as high blood pressure, heart disease, depression, erectile dysfunction, acid reflux, diabetes and stroke. If you suspect that you or a loved one may be suffering from sleep apnea and could be at risk for these health complications, see a doctor to discuss your sleep problems and treatment options.
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