Although rare cancers don’t occur often, they can affect people of all ages and genders. Greater awareness of rare cancers may lead to earlier diagnosis and management, and potentially better survival rates. Consider these facts about soft tissue sarcomas, one type of rare cancer.
Understanding Rare Cancers
Four facts to know about one type of rare cancer, soft tissue sarcomas
(Family Features) Although rare cancers don’t occur often, they can affect people of all ages and genders.
A rare cancer is defined as fewer than 15 new diagnoses per 100,000 people per year, according to the National Cancer Institute (NCI). Additionally, as noted by the American Cancer Society (ACS), the 5-year survival rate is lower for people diagnosed with a rare cancer than for people living with more common cancers. Greater awareness of rare cancers may lead to earlier diagnosis and management, and potentially better survival rates.
If you have recently been diagnosed with STS, it’s important to ask your doctor for more information about the specific sub-type you have. For example, if you received a diagnosis of undifferentiated sarcoma, ask your doctor for an integrase interactor-1 (INI1) test to see if you have a rare STS called epithelioid sarcoma (ES). (See sidebar for more on ES.)
Learning More About Epithelioid Sarcoma
A rare type of STS, epithelioid sarcoma (ES) accounts for less than 1% of all STS, which themselves account for approximately 1% of all cancers, according to research published in “Archives of Pathology & Laboratory Medicine.” ES can present as a lump or sore on the skin.
Notably, more than 90% of ES tumors do not express the INI1 protein, which when present acts to suppress tumor growth. INI1 loss plays an important role in the diagnosis of ES, according to researchers with “The American Journal of Surgical Pathology.”
Data from the NCI indicates that approximately 150-200 people in the United States are diagnosed with ES each year. Research published in “The Journal of Clinical and Aesthetic Dermatology” found the disease often occurs in young adults in their 20s and 30s. Because most ES patients are adolescents and young adults, there is a gap in the unique psycho-social needs for this patient population, including resources for patients who miss school while undergoing treatments, as well as fertility considerations later in life.
If you or someone you love is living with ES, you can find resources, information and the real-life perspective of an ES survivor at ESsentialsforES.com.
Content courtesy of Epizyme, Inc.
Photo courtesy of Getty ImagesSOURCE:
Breast cancer. It is a simple phrase representing a complex journey thousands of women travel each year. Even during October, when Breast Cancer Awareness Month brings attention to the disease, many people don’t realize breast cancer is not just one disease; it’s extremely complex and classified into different types. To change the perception that breast cancer is just one disease, consider these tips.
There is No One-Size-Fits-All Breast Cancer
(Family Features) Breast cancer. It is a simple phrase representing a complex journey thousands of women travel each year. Even during October, when Breast Cancer Awareness Month brings attention to the disease, many people don’t realize breast cancer is not just one disease; it’s extremely complex and classified into different types. Understanding the many types of breast cancer is important – not just for the 1-in-8 women who will be diagnosed in their lifetime, – but for those who love them, too.¹
Laura Ross knows first-hand. She was diagnosed with triple-negative, stage I breast cancer when she was 41 years old.
“No one in my family had breast cancer and I had no information,” Ross said. “I had not even heard breast cancer had different types until the results came back from my biopsy.”
Unprepared and in shock, she relied heavily on her support circle, which in addition to her doctor and healthcare team, helped her learn more about her diagnosis. Empowered by this information, Ross had the confidence to make informed treatment decisions with her doctor.
You or someone you love may be affected by breast cancer in your lifetime and have to help make a treatment decision. To change the perception that breast cancer is just one disease, Living Beyond Breast Cancer, Genentech and ThirdLove created the “Not One Type” campaign, which offers these tips:
During October – and year-round – arm yourself with knowledge about the different types of the disease and use that information to be a more empowered patient or caregiver. Visit NotOneType.org to learn more.
Photo courtesy of Getty Images
¹ American Cancer Society. Cancer Facts & Figures 2018. Atlanta: American Cancer Society; 2018.
² Kohler BA, et al. Annual Report to the Nation on the Status of Cancer, 1975–2011, Featuring Incidence of Breast Cancer Subtypes by Race/Ethnicity, Poverty, and State. J Natl Cancer Inst 2015;107(6):djv048.SOURCE:
As a parent, you want to be sure your child gets the best and safest care. Anesthesia’s effect on the developing brain is being researched continually, and you’ll be comforted to know that anesthesia provided during one brief surgery is considered safe by the experts at the American Society of Anesthesiologists (ASA).
(BPT) - When surgery is necessary, anesthesia ensures your child can safely receive life-saving or corrective treatment while managing the pain and discomfort of the procedure. Anesthesia’s effect on the developing brain is being researched continually, and you’ll be comforted to know that anesthesia provided during one brief surgery is considered safe by the experts at the American Society of Anesthesiologists (ASA).
“Parents should rest assured that surgery is only recommended when necessary and your child will be monitored during every minute of the procedure to ensure the safest and most effective care,” said Linda Mason, M.D., ASA president-elect and a pediatric physician anesthesiologist. “In an effort to continually improve anesthesia, physician anesthesiologists have been at the forefront of research on the effects of anesthesia on children — and adults — and continue to study this important issue.”
As a parent, you want to be sure your child gets the best and safest care. To that end, ASA offers the following guidance:
1. Don’t delay or avoid surgery: Work closely with your child’s surgeon and other physicians to determine if surgery is the right choice. In most cases, delaying or avoiding surgery may mean the child does not receive much-needed care. For example, if your child’s doctor recommends placing tubes to drain fluid in the ears and prevent ongoing infection, not doing the procedure increases the risk of delayed speech and language development, which can affect social and academic success.
2. Talk to the physician anesthesiologist: Highly trained to ensure safe, high-quality care, the physician anesthesiologist will monitor your child through the entire surgery so he or she stays warm, gets enough oxygen, has stable blood pressure and receives necessary fluids. Depending on the location and type of surgery, your child may have more than one anesthesia option. Be sure to ask the physician anesthesiologist about those options as well as any other questions you have, such as:
* How can I ensure my child has a successful surgery?
* How can I help my child prepare?
* Is anesthesia safe for my child?
3. Rest assured that limited exposure is considered safe: Experts note that a single, relatively short exposure to anesthesia and surgery is unlikely to have negative effects on behavior or learning. And most common surgeries in children require anesthesia for less than two hours. Research continues regarding the use of anesthesia in repeated or longer surgeries. But parents should be confident that physicians are aware of the concerns and will only recommend a surgery or procedure if necessary.
“ASA is committed to advancing research regarding this issue and its physician scientist members are active in cutting-edge research both in the laboratory and at the patient’s bedside,” said Dr. Mason. “Through the SmartTots program, ASA partners with the International Anesthesia Research Society and the U.S. Food and Drug Administration (FDA) to support funding to investigate the safety of anesthesia for infants and young children.”
Learn about preparing your child for surgery and questions to ask about anesthesia safety for your young child at asahq.org/kidschecklist. Additionally, download ASA’s companion coloring book for children who are about to undergo anesthesia and surgery.
The American Society of Anesthesiologists
Founded in 1905, the American Society of Anesthesiologists (ASA) is an educational, research and scientific society with more than 52,000 members organized to raise and maintain the standards of the medical practice of anesthesiology. ASA is committed to ensuring physician anesthesiologists evaluate and supervise the medical care of patients before, during and after surgery to provide the highest quality and safest care every patient deserves.
For more information on the field of anesthesiology, visit the American Society of Anesthesiologists online at asahq.org. To learn more about the role physician anesthesiologists play in ensuring patient safety, visit asahq.org/WhenSecondsCount. Like ASA on Facebook; follow ASALifeline on Twitter.
Melanoma is a skin cancer many of us are familiar with. But have you heard of a skin cancer called cutaneous squamous cell carcinoma (CSCC)? If not, you might be surprised to learn that CSCC is actually one of the most common skin cancers in the world – even more common than melanoma with an estimated 700,000 new cases diagnosed in the U.S. annually. CSCC can also be a deadly skin cancer. Every year, an estimated 7,000 people in the U.S. die of CSCC.
(BPT) - Most of us look forward to the balmy breezes and cheerful sunshine brought about by spring and summer, especially those of us living in climates where winter is long, gloomy and bitterly cold. Yet as we get our shorts, polo shirts and swimsuits out of storage, it’s important to remind ourselves to stay sun smart and vigilant against skin cancer.
Melanoma is a skin cancer many of us are familiar with. But have you heard of a skin cancer called cutaneous squamous cell carcinoma (CSCC)? If not, you might be surprised to learn that CSCC is actually one of the most common skin cancers in the world – even more common than melanoma with an estimated 700,000 new cases diagnosed in the U.S. annually.
CSCC can also be a deadly skin cancer. Every year, an estimated 7,000 people in the U.S. die of CSCC. And in the southern part of the U.S., the number of deaths from CSCC may actually be higher than deaths from melanoma.
“The good news is that CSCC is usually highly treatable when detected early,” notes Dr. Sunandana Chandra, a medical oncologist at the Robert H. Lurie Comprehensive Cancer Center Northwestern University. “That’s why it is important to know about CSCC, so you can take the necessary precautions to protect yourself, know how to identify early signs of the cancer, and to understand your treatment options if it progresses. Being vigilant about your skin and reaching out to your doctor early with any concerns will allow you to consider more treatment options and possibly have better outcomes.”
So what do you need to know about CSCC? Here are three important tips:
If you think you or someone you know may have CSCC, contact a doctor and visit SkinCancer.org.
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